The Augmentative Communication Program (ACP) at Boston Children’s Hospital has received a $1.5 million donation to set up a program focused on improving the quality of life of amyotrophic lateral sclerosis (ALS) adult patients. “If you could not speak and you want to say to someone, ‘I’m thirsty,’ a computer-generated synthetic voice is fine.
11 years ago, Pete Anderson was diagnosed with motor neuron disease – an incurable condition that’s robbed him of his voice and left him confined to a wheelchair. His life probably wouldn’t normally grab much attention if it weren’t for Pete Anderson’s determined effort simply to be able to…
Physical trauma at earlier ages appears associated with an increased risk of amyotrophic lateral sclerosis (ALS), according to a study titled “Physical Trauma and Amyotrophic Lateral Sclerosis: A Population-Based Study Using Danish National Registries” published in the American Journal of Epidemiology. ALS, also known as Lou Gehrig’s disease and Charcot…
In this video by Lee Memorial Health System, learn more about why ALS (or Lou Gehrig’s disease) is still a mystery, including what causes it. But doctors have no doubt about its progression. They believe they can provide people with this fatal disease some relief, if they could just…
MND stands for motor neurone disease. It is also known as amyotrophic lateral sclerosis in many parts of the world, and therefore in some countries better known as ALS. This short video explains motor neurone disease (MND/ALS) and provides a snapshot of MND in Australia. Learn more about…
Cognitive impairment may present an obstacle for patients with amyotrophic lateral sclerosis (ALS) using brain-computer interface devices, according to a study published in the Journal of Neural Engineering. The findings underscore the importance of considering disease heterogeneity when designing these potentially beneficial devices for clinical use. The study, “Performance…
In this video by Tim Noonan, we enter the world of Scott Sullivan, an ordinary man showing extraordinary courage. This 39-year-old Queensland dad is battling motor neurone disease and lives every day as if it’s his last. Every minute, every second with his wife and two children is precious because…
In this video by David Steenblock, watch him talk about how he believes is it possible to treat ALS with some tips. Learn more about ALS here: https://bit.ly/ALSNewsToday ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis…
Researchers have, for the first time, managed to selectively alter gene expression in brain motor neurons of mice modeling amyotrophic lateral sclerosis (ALS) without affecting other neurons in the motor cortex. The results are a major step forward in efforts to develop gene replacement therapy for ALS. “The brain is…
In 2013, two men diagnosed with MND set out on an epic adventure. On a customized recumbent tandem bike, the two men rode 1,000,000 meters (1000km) from Brisbane to Sydney to raise awareness for MND, and funds to find a cure. One pedalled with his arms, the other with…
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