https://vimeo.com/124556645 This video from the ALS Association Texas chapter is all about Steve. A recently retired chaplain for the federal prison system from Fort Worth, Texas, Steve is about to get married to his longtime sweetheart, Anna. MORE: Pastor Kevin Kinchen hasn’t let his ALS diagnosis get in the…
Biogen is acquiring Karyopharm Therapeutics’ KPT-350 and other potential treatments for neurodegenerative diseases such as ALS. “As a global innovative leader in neuroscience that brings world-class capabilities in developing and commercializing products targeting a broad range of neurological conditions, Biogen is well suited to further advance the development of KPT-350,” Michael…
Scientists at the University of Edinburgh discovered that the human neuromuscular junction (NMJ) — a cell connection between neurons and muscle that enables motion — is different in size and structure than other mammals, including mice, which are routinely used in research. “Our findings provide unique insights into the…
ALS can be a difficult disease to diagnose as many of the early signs and symptoms can mimic those of other conditions. This video shared by Mike Brez is all about Clara. Clara was recently diagnosed with amyotrophic lateral sclerosis (ALS) after being misdiagnosed with carpal tunnel syndrome. MORE:…
A defense mechanism that uses a protein linked to ALS could be part of the reason why humans live longer than other animals, a study suggests. The research, “Oxidation of SQSTM1/p62 mediates the link between redox state and protein homeostasis,” appeared in Nature Communications. Autophagy is…
Amyotrophic lateral sclerosis (ALS) is a disease that progressively shuts down your muscles by attacking certain cells in the brain and spinal cord that are needed to keep muscles moving. Eventually, patients will lose their mobility, have trouble moving, walking, swallowing and even breathing. MORE: 13 facts about ALS…
In this touching video from Friends of Alan Gustafson, viewers see how quickly the progressive condition amyotrophic lateral sclerosis (ALS) can change a person’s life. MORE: Four treatments that can help improve life with ALS In just a year, Alan has gone from an active father to being…
Amyotrophic lateral sclerosis (ALS) patients experiencing feelings of apathy reported lower quality of life (QoL), particularly regarding achievements in life and community connectedness, a new Australian study reports. The research, “Apathy and its impact on patient outcome in amyotrophic lateral sclerosis,” appeared in the Journal of…
https://vimeo.com/124557753 This heartfelt video from the ALS Association Texas chapter is all about Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known what the future had in…
A cell transport mechanism called endocytosis may be flawed in people with amyotrophic lateral sclerosis, a study reports. The flaw may contribute to the buildup of protein clumps in muscle-controlling motor nerve cells, a hallmark of ALS. In a study published in the journal Nature Communications, a University of…
