In this touching video from Friends of Alan Gustafson, we see how quickly the progressive condition amyotrophic lateral sclerosis (ALS) can change a person’s life. MORE: Four treatments that can help improve life with ALS In just a year, Alan has gone from an active father to being…

Pete Frates, the Boston man who invented the Ice Bucket Challenge that raised millions for ALS, was reported to have kicked the bucket this summer — but it turned out to be a newspaper’s goof. The erroneous report stemmed from a headline in Britain’s Sun declaring that the 32-year-old had died…

Analysis of a large group of patients with amyotrophic lateral sclerosis (ALS) has shown that patients who also have dementia at diagnosis are more likely to have bulbar-onset ALS, a subtype of the disease in which patients first experience symptoms in the head and neck, including trouble speaking or swallowing. These patients also…

https://www.youtube.com/watch?v=7FfWa7fcUw4 This video from Patients Like Me is all about baseball-loving Gus, who has amyotrophic lateral sclerosis (ALS). Gus explains that he is much more than his condition and hopes that others realize they are more than their illnesses, too. MORE: Explaining the early symptoms of…

Measuring changes in how humans find their way could enable earlier diagnosis of dementia in neurodegenerative diseases, such as amyotrophic lateral sclerosis (ALS) or Alzheimer’s disease, a new review study suggests. The research, “The Aging Navigational System,” appeared…

Amyotrophic lateral sclerosis (ALS) patients without any type of eye disease have thinner retinal layers, a new study shows. The research, titled “Retinal thinning in amyotrophic lateral sclerosis patients without ophthalmic disease” was published in the journal PLOS…

Being diagnosed with amyotrophic lateral sclerosis (ALS) is a difficult and stressful time. You’ll probably feel incredibly overwhelmed in the first few days and weeks, and struggle to understand the ramifications involved. To help with the process, we’ve compiled a list of tips for patients who have recently been diagnosed with…

Being diagnosed with amyotrophic lateral sclerosis (ALS) can be devastating for patients and their families and friends, but there are ways to move forward. We’ve put together a list of coping strategies to help you get through the first few weeks with help from the Mayo Clinic and alswindsor.ca. Allow time and space to…

Routinely measuring neurofilaments in the blood and spinal fluid of people with amyotrophic lateral sclerosis (ALS) can help identify patients with early symptoms, concludes a recent study. Researchers led by Dr. Emily Feneberg of England’s University of Oxford presented the study, “Multicenter evaluation of neurofilaments in early symptom onset amyotrophic…

The company Verge Genomics, which uses genomic data for neuroscience therapeutics, announced that it will join specialized departments at four top universities to boost research in amyotrophic lateral sclerosis (ALS). The innovative industry-academic collaboration will combine machine learning with genomic, genetic, biological, and phenotypical data to accelerate the translation…