This segment from CBS Boston is sharing the good news that the FDA-approved drug Radicava for the treatment of amyotrophic lateral sclerosis (ALS) is now available for patients in the U.S. MORE: Nine things to know about Radicava The breakthrough drug has been found to slow down the…
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The ALS Association is celebrating the third anniversary of the ALS Ice Bucket Challenge with a new awareness and fund-raising campaign to support the amyotrophic lateral sclerosis (ALS) community. The new campaign, “Every Drop Adds Up,” with the help of Kwittken, a global communications agency, aims…
Increasing the production of the muscle protein Dok-7 may be a way to treat the muscle weakness in ALS, a Japanese study reports. The research, “DOK7 genes therapy enhances motor activity and life span in ALS model mice,” was published in the journal EMBO Molecular Medicine. A hallmark…
7 Things to Keep in Mind If a Loved One Has ALS
An amyotrophic lateral sclerosis (ALS) diagnosis can be devastating for both the patient and their family. If a loved one has recently been diagnosed with ALS, they’ll need your support now more than ever. Remember to be understanding and patient. We’ve put together a list of things to consider if a someone close to you has…
Researchers have found a way to break down aggregated RNA molecules that cause diseases such as certain inherited forms of amyotrophic lateral sclerosis (ALS). As the technique has the potential to treat several diseases which currently lack treatment options, the research team from the University of California, San Diego (UCSD)…
Radicava (edaravone), the first new medication for amyotrophic lateral sclerosis (ALS) in 22 years, is now available in the United States. Approved May 5 by the U.S. Food and Drug Administration (FDA) for all U.S. adults diagnosed with ALS, Radicava has been shown to slow the loss of physical function in ALS patients by…
Brazilian doctors have begun prescribing HempMeds Brasil‘s hemp cannabis oil to ALS and psoriasis patients, the company’s U.S. parent reports. San Diego-based Medical Marijuana said it is the first time Brazilian physicians have prescribed the product, known as Real Scientific Hemp Oil, to those with the two diseases. HempMeds Brasil…
7 ALS Facts You Might Find Interesting
Amyotrophic lateral sclerosis, also know as ALS or Lou Gehrig’s disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. There are two different types of ALS: sporadic and familial. To help you understand more about this disease, we’ve put together a list with…
Filmmaker Finishes Film Project With Advanced ALS
In this video from CBS Sunday Morning, follow the journey of award-winning filmmaker Simon Fitzmaurice as he completes his pet project, a film called My Name is Emily, despite being diagnosed with amyotrophic lateral sclerosis (ALS) eight years ago. MORE: Explaining the progression…
Amylyx Pharmaceuticals has dosed the first patient in a Phase 2 clinical trial that will assess AMX0035’s ability to treat amyotrophic lateral sclerosis. Researchers are seeking 132 participants for the CENTAUR study (NCT03127514). A unique feature of the trial is that Amylyx designed it in collaboration with patients and caregivers…