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Brain-computer interface allows man with ALS to communicate

A brain-computer interface allowed Casey Harrell, a 45-year-old man with amyotrophic lateral sclerosis (ALS) whose disease had made it nearly impossible to speak, to communicate through a computer that used his own voice. Harrell’s experience in the ongoing pilot BrainGate2 clinical trial (NCT00912041) was described in the study,…

What we can learn from living out loud with ALS

I’m writing this column while gazing out over a foggy Pacific Ocean, aboard a ship that’s taking a group of us from Vancouver, British Columbia, Canada, to the icy waters of Glacier Bay, Alaska, and back. Intermittently on this voyage, pods of porpoises come racing close by the ship, and…

Having all the facts helps me live with ALS

Those crazy, runaway thoughts. When I was young, I used to have them all the time. That’s because I didn’t know the whole story about certain things, so my mind would invent the answers. While growing up, I learned the value of having all the facts, and my crazy…

PrimeC normalizes iron biomarkers in Phase 2b ALS trial

One year of treatment with the experimental oral therapy PrimeC led to improved iron accumulation in people with amyotrophic lateral sclerosis (ALS), according to new clinical trial data announced by PrimeC’s developer, Neurosense Therapeutics. Previous results showed that people who received PrimeC for one year experienced significantly slower…