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Kevin Swan was diagnosed with ALS in February of 2012. Within a couple of months of diagnosis, he left his job as Director of Communications for SingleHop, a rapidly growing infrastructure service provider, and founded A Life Story Foundation. A 501(c)(3) organization, ALSF’s mission is to tell the stories…

In this Edinburgh Medical School video, learn more about the Voicebanking Research Project at the University of Edinburgh. This project aims to create personalised synthetic voices for use in communication aids. Learn more about ALS here: https://bit.ly/ALSNewsToday…

“A former captain of the Boston College baseball team and professional baseball player in Europe, Pete Frates was diagnosed with ALS in March of 2012, at the age of 27. Since his diagnosis, Pete has enjoyed the strength and support of his family and new bride, Julie. Pete and…

https://www.youtube.com/watch?v=KIFiEOzvR3Q Watch motor neurone disease patient Liam and his wife Anna share their thoughts on having the right wheelchair at the right time. Learn more about ALS here: https://bit.ly/ALSNewsToday

Matt Belina, US Navy pilot was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He and his wife are now actively trying to fight the barriers the FDA’s lack of approvals raise and prevent him from having access to experimental drugs he believes might save his life. Learn more…