Kevin Swan was diagnosed with ALS in February of 2012. Within a couple of months of diagnosis, he left his job as Director of Communications for SingleHop, a rapidly growing infrastructure service provider, and founded A Life Story Foundation. A 501(c)(3) organization, ALSF’s mission is to tell the stories…
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The Voicebanking Research Project
In this Edinburgh Medical School video, learn more about the Voicebanking Research Project at the University of Edinburgh. This project aims to create personalised synthetic voices for use in communication aids. Learn more about ALS here: https://bit.ly/ALSNewsToday…
What is Amyotrophic Lateral Sclerosis?
Learn all about amyotrophic lateral sclerosis (ALS) in this video from Karalyn Pappas. Learn more about ALS here: https://bit.ly/ALSNewsToday…
Scientists from Rutgers and Stanford universities have developed a potentially revolutionary technique to grow new neurons from adult stem cells and better ensure their survival during transplantation to the brain. The method, involving the use of 3-D scaffolds, may one day help to treat amyotrophic lateral sclerosis (ALS). Published in the…
A Life Story Foundation – Pete Frates’ Story
“A former captain of the Boston College baseball team and professional baseball player in Europe, Pete Frates was diagnosed with ALS in March of 2012, at the age of 27. Since his diagnosis, Pete has enjoyed the strength and support of his family and new bride, Julie. Pete and…
Actors Eddie Redmayne and Felicity Jones talk about a visit from Stephen and Jane Hawking to the set of ‘The Theory of Everything’. Learn more about ALS here: https://bit.ly/ALSNewsToday…
When the New York State Department of Health‘s Medical Marijuana Program was launched on Jan. 7, 2016, Upper East Side physician Dr. Thomas O’Brien was the first doctor to secure a certification for a patient to be prescribed medical marijuana. He has since helped 200 patients to achieve…
In this ALS Association video, learn more about adjusting to swallowing difficulties and maintaining good nutrition in ALS. Learn more about ALS here: https://bit.ly/ALSNewsToday…
MND: Having the Right Wheelchair
https://www.youtube.com/watch?v=KIFiEOzvR3Q Watch motor neurone disease patient Liam and his wife Anna share their thoughts on having the right wheelchair at the right time. Learn more about ALS here: https://bit.ly/ALSNewsToday
The Matt Bellina Story
Matt Belina, US Navy pilot was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He and his wife are now actively trying to fight the barriers the FDA’s lack of approvals raise and prevent him from having access to experimental drugs he believes might save his life. Learn more…