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Documenting Life with Motor Neuron Disease
11 years ago, Pete Anderson was diagnosed with motor neuron disease – an incurable condition that’s robbed him of his voice and left him confined to a wheelchair. His life probably wouldn’t normally grab much attention if it weren’t for Pete Anderson’s determined effort simply to be able to…
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What is MND?
MND stands for motor neurone disease. It is also known as amyotrophic lateral sclerosis in many parts of the world, and therefore in some countries better known as ALS. This short video explains motor neurone disease (MND/ALS) and provides a snapshot of MND in Australia. Learn more about…
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Motor Neurone Disease: The Long Goodbye
In this video by Tim Noonan, we enter the world of Scott Sullivan, an ordinary man showing extraordinary courage. This 39-year-old Queensland dad is battling motor neurone disease and lives every day as if it’s his last. Every minute, every second with his wife and two children is precious because…
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Legacy – A Ride to Conquer MND
In 2013, two men diagnosed with MND set out on an epic adventure. On a customized recumbent tandem bike, the two men rode 1,000,000 meters (1000km) from Brisbane to Sydney to raise awareness for MND, and funds to find a cure. One pedalled with his arms, the other with…
Amylyx Pharmaceuticals, a company developing a innovative therapeutic for amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease), recently announced that former Biogen CEO Walter Gilbert, Ph.D and Nobel Laureate, will join Amylyx’s board of directors. “Dr. Gilbert brings an enormous breadth of experience as a scientist, biotech founder,…
CIRM has funded the ALS Disease Team led by scientists at UC San Diego, The Salk Institute, and Life Technologies Corporation, who aim to bring a human embryonic stem cell-based ALS therapy to clinical trials within four years. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is…
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Documentary: Living with Motor Neurone Disease (MND)
Motor neurone disease (MND) is a terminal disease and is physically and emotionally devastating for both the sufferer and the carer. In this Tobin Brothers exclusive documentary, Lisa Morgan, wife of actor Richard Morgan, and former AFL coach Neale Daniher talked to Michael Lynch about their confronting experiences with…
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University of Bern researchers have discovered that the synaptic protein Homer-3 is linked to the death of Purkinje motor neurons in Spinocerebellar ataxia type 1 (SCA1), a motor neuron disease that, like amyotrophic lateral sclerosis (ALS), is characterized by extensive motor neuron loss. The study, titled “Impaired mTORC1-Dependent Expression of…