Filmmaker Finishes Film Project With Advanced ALS

Filmmaker Finishes Film Project With Advanced ALS

In this video from CBS Sunday Morning, we follow the journey of award-winning filmmaker Simon Fitzmaurice as he completes his pet project, a film called My Name is Emily, despite being diagnosed with amyotrophic lateral sclerosis (ALS) eight years ago.

MORE: Explaining the progression of ALS

The film follows the story of a young Irish foster girl who sets out to find her real father. What makes writer and director Fitzmaurice’s accomplishment even greater, is that towards the end of the project he was only able to communicate with his colleagues using technology controlled by eye movement as his ALS had progressed to the stage where he was unable to talk or use his hands.

Hollywood actor Colin Farrell talks about how extraordinary Simon and his wife are and how they’ve handled life with ALS.

MORE: Living with ALS: Chris Mehess’ story

ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

One comment

  1. Heena says:

    Wishing him and his family all the best,
    How can we can details of the computer being used for communication.
    My father is in the same condition

Leave a Comment

Your email address will not be published. Required fields are marked *