Advocacy Partner: ALS Network
About the ALS Network
The ALS Network – Your connection to care, research, and advocacy. We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.
Contact: Eric Beikmann – Senior Director, Marketing & Communications
Phone: 310-560-4726
Email: [email protected]
Resources
ALStogether
ALStogether is a vibrant online Slack community founded by ALS advocate Brooke Eby and facilitated by the ALS Network. It’s a powerful space for people with ALS and their loved ones to share and exchange information, resources, and lived experiences.
ALS Advocacy
ALS doesn’t stop, and neither do we. To grow our impact and fuel our advocacy efforts, we need your support. ALS Network advocates are passionate about encouraging government officials at all levels – state, local, and federal – to improve awareness and resources for people affected by ALS. Advocates are people who affect real change in the way that our government responds to the needs of the ALS community.
ALS Care
Each person with ALS who registers with ALS Network is connected to a professional Care Manager with extensive knowledge of ALS and local resources. We are here for everyone facing this disease. Our compassionate Care Managers are available to help maximize health, independence, mobility, safety, and communication.
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- Newer ALS diagnostic criteria more sensitive than older approaches
- Putting a spotlight on the challenges of being a caregiver
- Revamped plan aims to hasten US approval of treatment for ALS
- Trial tests fever-inducing device as potential treatment for ALS
- FDA puts experimental T-cell treatment for ALS on fast track
