November 12, 2020November 16, 2020

An Ounce of Prevention is Worth a Pound of Cure (Benjamin Franklin, 1736) Sponsored Article

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Feeding tubes play a critical role in ensuring that people with ALS who have difficulty swallowing can get proper nutrition, stay hydrated, and take their medications. One of the significant ... Read more

April 16, 2021April 16, 2021

AAN 2021

AAN 2021

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April 16, 2021April 16, 2021

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

News, syndicated

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a ... Read more

April 16, 2021April 19, 2021

Actimed Plans to Advance Treatment for Muscle Wasting in ALS

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Actimed Therapeutics is developing S-oxprenolol to prevent muscle wasting and body mass loss due to amyotrophic lateral sclerosis (ALS), using proceeds from a recent license agreement with Faraday Pharmaceuticals. Under the agreement, ... Read more

April 15, 2021April 12, 2021

Wanting More Than Family Screen Time

Columns, Joyful Sorrow - a Column by Kristin Neva

Family movie nights are great, but it’s a challenge to think of other things we can do together now that my husband, Todd, is paralyzed from ALS. I’ve long had ... Read more

April 15, 2021April 15, 2021

US Students Affected by ALS Can Apply for Scholarships Until May 24

News

The ALS Association is now accepting applications for the Jane Calmes ALS Scholarship Fund, aimed at supporting U.S. students whose lives are affected financially as well as personally by amyotrophic ... Read more

April 14, 2021April 12, 2021

Celebrating a Trivial Pursuit at the 100 Mark

Columns, Notes From the ALS Front - a Column by Rick Jobus

“One hundred bottles of beer on the wall, One hundred bottles of beer! Take one down, Pass it around, Ninety-nine bottles of beer on the wall!” That ditty was invariably ... Read more

April 14, 2021April 14, 2021

Amylyx to Seek AMX0035’s Approval in Europe

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Amylyx Pharmaceuticals is planning to file an application by the end of this year requesting that the European Medicines Agency (EMA) approve AMX0035 as an oral treatment for amyotrophic lateral ... Read more

April 13, 2021April 9, 2021

Friends Don’t Tell Friends How to Cure Their Disease

Columns, Living Well with ALS - a column by Dagmar Munn

It all began as one of those typical online interactions when someone reaches out and asks for help. A gentleman contacted me via Facebook, explaining that his friend was recently ... Read more

April 13, 2021April 16, 2021

Scribe Raises $100M to Advance CRISPR as Means of Treating ALS

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Note: This story was updated on April 16, 2021, to note that Scribe’s founding year was 2018, not 2017. Scribe Therapeutics has raised $100 million in funding to develop CRISPR-based ... Read more

April 12, 2021April 12, 2021

It’s Official: Each June 2 Will Be ‘Lou Gehrig Day’ for Major League Baseball

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After a protracted campaign to make it happen, Major League Baseball (MLB) agreed to set aside each June 2 to pay tribute to the late Lou Gehrig, the legendary New ... Read more

April 9, 2021April 9, 2021

Invitae Opens Genetic Testing to Adults With ALS Symptoms or Family Risk

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People at risk or suspected of having some of the most common neurodegenerative disorders, including amyotrophic lateral sclerosis (ALS), may now access a genetic test at no charge that could ... Read more

April 8, 2021April 5, 2021

Spring Break With ALS Comes With Sacrifice and Love

Columns, Joyful Sorrow - a Column by Kristin Neva

I think a lot about how a parent’s ALS affects kids. Recently, an online friend lost her husband to ALS. She has small children and has been posting about their ... Read more