March 25, 2020March 24, 2020
Painting Broad Brushstrokes from ALS to COVID-19
Columns, Notes From the ALS Front - a Column by Rick Jobus
Recently I chanced upon a re-broadcast of an entrée from the PBS series, “American Masters.” As the subject, Andrew Wyeth, ... Read more
March 25, 2020March 25, 2020
‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS, Other Neurodegenerative Diseases
News
Human cells produce a type of proteins, termed “Heroes,” that protect against the formation of toxic protein aggregates involved ... Read more
March 24, 2020March 23, 2020
My Strategy for Facing Change: Adapt, Learn, Survive
Columns, Living Well with ALS - a column by Dagmar Munn
Social distancing? Shelter in place? For many like me who live with ALS, the recent COVID-19 guidelines to “stay ... Read more
March 24, 2020March 24, 2020
Given Proteins in Blood Cells May Be Markers of ALS and Its Likely Course
News
Levels of specific proteins found in specialized immune cells — white blood cells like lymphocytes and monocytes — can serve ... Read more
March 23, 2020March 23, 2020
ALS Association Grant to Advance Treatment Aimed at Gut Microbiota
News
Bloom Science, a biopharmaceutical company, announced it has received a $500,000 grant from The ALS Association to advance a ... Read more
March 20, 2020March 20, 2020
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
News
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy ... Read more
March 19, 2020March 18, 2020
Making Peace with the Waves of Emotion that Come with ALS
Columns, Joyful Sorrow - a Column by Kristin Neva
After my husband, Todd, was diagnosed with ALS, we battened down the hatches to prepare for the coming storm. ... Read more
March 19, 2020March 19, 2020
FAIM Protein Prevents, Reverses Mutant SOD1 Clumping, Study Shows
News
A molecule that prevents cell death was able to prevent and reverse clumping of a mutant form of the ... Read more
March 18, 2020March 18, 2020
Stimulating Muscle Cells May Help to Repair Motor Neurons
News
Muscle cell activity helps to promote motor nerve cell repair after injury, scientists found in using a device to ... Read more
March 17, 2020March 17, 2020
Patients with Milder Weaknesses Show Ability to Drive in Simulator Study
News
Amyotrophic lateral sclerosis (ALS) patients with mild to moderate disease progression show an ability to drive that’s comparable to ... Read more
March 16, 2020March 23, 2020
Collaboration Funds Experimental Therapy for Rare FUS-ALS
News
Eight patients will receive jacifusen, an experimental therapy for amyotrophic lateral sclerosis (ALS) caused by FUS gene mutations, under a ... Read more
March 13, 2020March 13, 2020
Animal Studies Targeting Mitochondria Help Prolong Survival, Review Shows
News
Studies in animal models investigating mitochondrial abnormalities in amyotrophic lateral sclerosis (ALS) found that therapies targeting mitochondria — the powerhouses ... Read more

March 25, 2020March 24, 2020

Painting Broad Brushstrokes from ALS to COVID-19

Columns, Notes From the ALS Front - a Column by Rick Jobus

Recently I chanced upon a re-broadcast of an entrée from the PBS series, “American Masters.” As the subject, Andrew Wyeth, was one of my late dad’s favorite artists, I enthusiastically ... Read more

March 25, 2020March 25, 2020

‘Hero’ Proteins Protect Cells from Toxic Clumps Underlying ALS, Other Neurodegenerative Diseases

News

Human cells produce a type of proteins, termed “Heroes,” that protect against the formation of toxic protein aggregates involved in several neurological conditions, including amyotrophic lateral sclerosis (ALS), and ... Read more

March 24, 2020March 23, 2020

My Strategy for Facing Change: Adapt, Learn, Survive

Columns, Living Well with ALS - a column by Dagmar Munn

Social distancing? Shelter in place? For many like me who live with ALS, the recent COVID-19 guidelines to “stay home” and “work from home” are what we already do! ... Read more

March 24, 2020March 24, 2020

Given Proteins in Blood Cells May Be Markers of ALS and Its Likely Course

News

Levels of specific proteins found in specialized immune cells — white blood cells like lymphocytes and monocytes — can serve as biomarkers for amyotrophic lateral sclerosis (ALS), helping doctors to ... Read more

March 23, 2020March 23, 2020

ALS Association Grant to Advance Treatment Aimed at Gut Microbiota

News

Bloom Science, a biopharmaceutical company, announced it has received a $500,000 grant from The ALS Association to advance a treatment that, by managing bacteria populations in the gut, might restore ... Read more

March 20, 2020March 20, 2020

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

News

Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see ... Read more

March 19, 2020March 18, 2020

Making Peace with the Waves of Emotion that Come with ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

After my husband, Todd, was diagnosed with ALS, we battened down the hatches to prepare for the coming storm. We moved to be near family in the Keweenaw Peninsula, ... Read more

March 19, 2020March 19, 2020

FAIM Protein Prevents, Reverses Mutant SOD1 Clumping, Study Shows

News

A molecule that prevents cell death was able to prevent and reverse clumping of a mutant form of the protein superoxide dismutase 1 (SOD1) — the underlying cause of ... Read more

March 18, 2020March 18, 2020

Stimulating Muscle Cells May Help to Repair Motor Neurons

News

Muscle cell activity helps to promote motor nerve cell repair after injury, scientists found in using a device to model motor neuron and muscle cell interaction. They believe this ... Read more

March 17, 2020March 17, 2020

Patients with Milder Weaknesses Show Ability to Drive in Simulator Study

News

Amyotrophic lateral sclerosis (ALS) patients with mild to moderate disease progression show an ability to drive that’s comparable to other adults, despite weaknesses with movement and cognition, a small ... Read more

March 16, 2020March 23, 2020

Collaboration Funds Experimental Therapy for Rare FUS-ALS

News

Eight patients will receive jacifusen, an experimental therapy for amyotrophic lateral sclerosis (ALS) caused by FUS gene mutations, under a joint effort from the ALS Association, Project ALS, and Columbia ... Read more

March 13, 2020March 13, 2020

Animal Studies Targeting Mitochondria Help Prolong Survival, Review Shows

News

Studies in animal models investigating mitochondrial abnormalities in amyotrophic lateral sclerosis (ALS) found that therapies targeting mitochondria — the powerhouses of cells — are consistently effective in prolonging survival, a ... Read more