September 20, 2019September 20, 2019
Study Suggests Mechanism for ALS Caused by Toxic Algae-produced Compound
News
A toxin produced by algae may contribute to the development of amyotrophic lateral sclerosis (ALS) by lowering the stability ... Read more
September 19, 2019September 17, 2019
The Art of Choosing a Family-friendly Movie
Columns, Joyful Sorrow - a Column by Kristin Neva
Spoiler alert: This column describes plotlines from the film “The Art of Racing in the Rain.” Friday movie night ... Read more
September 19, 2019September 19, 2019
FightMND Awards Clene More Than $9M to Advance Investigational ALS Therapy
News
Fight Motor Neuron Disease (FightMND) has awarded Clene Nanomedicine‘s Australian subsidiary $1.37 million AUD (approximately $9.3 million) to advance ... Read more
September 18, 2019September 18, 2019
Daiichi Sankyo Seeks Approval to Market Radicava in Brazil
News
Daiichi Sankyo is looking to market the amyotrophic lateral sclerosis (ALS) treatment Radicava (edaravone) in Brazil after reaching ... Read more
September 18, 2019September 18, 2019
FTC Warns Companies Against Unsubstantiated Advertising of CBD Products for ALS
News
The U.S. Federal Trade Commission (FTC) sent warning letters to three companies that sell cannabis-based products containing cannabidiol ... Read more
September 17, 2019September 18, 2019
Smooth Out a Rough Day with This Mental Game
Columns, Living Well with ALS - a column by Dagmar Munn
My husband and I recently took a short trip out of town. On the morning we left, it dawned ... Read more
September 17, 2019September 17, 2019
Riluzole More Effective with Complementary Therapies Like Radicava, Study Suggests
News
The benefits of riluzole, an approved treatment for amyotrophic lateral sclerosis (ALS), is thought to partly lie in its ... Read more
September 16, 2019September 18, 2019
Compound in Rice Bran Oil Protects Nerve Cells in ALS Models, Study Finds
News
A compound found in rice bran oil may lower oxidative stress levels and may be beneficial to people with amyotrophic ... Read more
September 13, 2019September 18, 2019
Levosimendan May Bolster Lung Strength in ALS Patients, Phase 2 Trial Suggests
News
Daily use of levosimendan capsules appear to preserve respiratory strength in people with amyotrophic lateral sclerosis (ALS) while in a ... Read more
September 12, 2019September 18, 2019
The Clock Starts Ticking After an ALS Diagnosis
Columns, Joyful Sorrow - a Column by Kristin Neva
After my husband, Todd, was diagnosed with ALS, we went on what we thought would be our last family ... Read more
September 12, 2019September 18, 2019
Cannabis-based Sativex May Help Reduce Spasticity in ALS Patients, Study Suggests
News
Sativex, a cannabis-based product, may help ease spasticity (stiff muscles) in people with amyotrophic lateral sclerosis (ALS), a German real-world ... Read more
September 11, 2019September 11, 2019
Chairway to Heaven: My Power Wheelchair Takes Me Higher
Columns, Notes From the ALS Front - a Column by Rick Jobus
With apologies to Jimmy Page and Robert Plant: Chairway to Heaven I can no longer walk down the road ... Read more

Study Suggests Mechanism for ALS Caused by Toxic Algae-produced Compound

News

A toxin produced by algae may contribute to the development of amyotrophic lateral sclerosis (ALS) by lowering the stability of a protein in the brain, a new study suggests. ... Read more

September 19, 2019September 17, 2019

The Art of Choosing a Family-friendly Movie

Columns, Joyful Sorrow - a Column by Kristin Neva

Spoiler alert: This column describes plotlines from the film “The Art of Racing in the Rain.” Friday movie night has become our favorite pastime, as it’s something we can ... Read more

September 19, 2019September 19, 2019

FightMND Awards Clene More Than $9M to Advance Investigational ALS Therapy

News

Fight Motor Neuron Disease (FightMND) has awarded Clene Nanomedicine‘s Australian subsidiary $1.37 million AUD (approximately $9.3 million) to advance clinical studies of a new amyotrophic lateral sclerosis (ALS) candidate ... Read more

September 18, 2019September 18, 2019

Daiichi Sankyo Seeks Approval to Market Radicava in Brazil

News

Daiichi Sankyo is looking to market the amyotrophic lateral sclerosis (ALS) treatment Radicava (edaravone) in Brazil after reaching a licensing agreement with the therapy’s maker, Mitsubishi Tanabe Pharma. The ... Read more

September 18, 2019September 18, 2019

FTC Warns Companies Against Unsubstantiated Advertising of CBD Products for ALS

News

The U.S. Federal Trade Commission (FTC) sent warning letters to three companies that sell cannabis-based products containing cannabidiol (CBD), cautioning them that making unsubstantiated claims about the health benefits ... Read more

September 17, 2019September 18, 2019

Smooth Out a Rough Day with This Mental Game

Columns, Living Well with ALS - a column by Dagmar Munn

My husband and I recently took a short trip out of town. On the morning we left, it dawned on me that I was going to have one of ... Read more

September 17, 2019September 17, 2019

Riluzole More Effective with Complementary Therapies Like Radicava, Study Suggests

News

The benefits of riluzole, an approved treatment for amyotrophic lateral sclerosis (ALS), is thought to partly lie in its antioxidant effects. A new study now reports that this activity ... Read more

September 16, 2019September 18, 2019

Compound in Rice Bran Oil Protects Nerve Cells in ALS Models, Study Finds

News

A compound found in rice bran oil may lower oxidative stress levels and may be beneficial to people with amyotrophic lateral sclerosis, an early study in fruit flies and disease-related ... Read more

September 13, 2019September 18, 2019

Levosimendan May Bolster Lung Strength in ALS Patients, Phase 2 Trial Suggests

News

Daily use of levosimendan capsules appear to preserve respiratory strength in people with amyotrophic lateral sclerosis (ALS) while in a supine, or lying flat, position, a sub-analysis of the Phase ... Read more

September 12, 2019September 18, 2019

The Clock Starts Ticking After an ALS Diagnosis

Columns, Joyful Sorrow - a Column by Kristin Neva

After my husband, Todd, was diagnosed with ALS, we went on what we thought would be our last family vacation. We flew into Los Angeles, visited friends, and toured ... Read more

September 12, 2019September 18, 2019

Cannabis-based Sativex May Help Reduce Spasticity in ALS Patients, Study Suggests

News

Sativex, a cannabis-based product, may help ease spasticity (stiff muscles) in people with amyotrophic lateral sclerosis (ALS), a German real-world study suggests. The study, “Real world experience of patients with amyotrophic ... Read more

September 11, 2019September 11, 2019

Chairway to Heaven: My Power Wheelchair Takes Me Higher

Columns, Notes From the ALS Front - a Column by Rick Jobus

With apologies to Jimmy Page and Robert Plant: Chairway to Heaven I can no longer walk down the road Unable to take on any load Those facts cause much ... Read more