November 20, 2019November 20, 2019
Kadimastem Seeks to Amend Protocol of its Trial Testing ALS Stem Cell Therapy AstroRx
News
Kadimastem plans to submit an amendment to the protocol of its ongoing Phase 1/2a trial in Israel assessing the ... Read more
November 19, 2019November 15, 2019
The 4 Ms: My Formula for Daily Living
Columns, Living Well with ALS - a column by Dagmar Munn
When I was diagnosed with ALS in 2010, my doctor told me there was one medication available to help ... Read more
November 19, 2019November 19, 2019
ALS Association Golden West Chapter Honors Mitsubishi Tanabe for Work into Treatments
News
The ALS Association Golden West Chapter has honored Mitsubishi Tanabe Pharma America (MTPA) with its Essey Commitment to Cures award for ... Read more
November 18, 2019November 18, 2019
ALS Prevalent Among Young Veterans Deployed in Post-9/11 U.S. Wars, Study Shows
News
Amyotrophic lateral sclerosis (ALS) is highly prevalent among young U.S. war veterans deployed post-9/11, particularly Air Force personnel, tactical ... Read more
November 15, 2019November 15, 2019
Aquestive Licenses ALS Therapy Riluzole Oral Film to Zambon in the European Union
News
Aquestive Therapeutics has granted a development and commercialization license to Zambon Pharma for its investigational oral film formulation of riluzole as ... Read more
November 14, 2019November 12, 2019
Calculating Risks While Balancing Family Life and ALS
Columns, Joyful Sorrow - a Column by Kristin Neva
I went parasailing during a vacation in Florida 10 years ago. I talked my brother into going with me, ... Read more
November 14, 2019November 14, 2019
Blocking SARM1 Prevents Neuronal Degeneration in Mice and Cell Models, Study Shows
News
Small molecule inhibitors that block the activity of SARM1 — an enzyme that plays a key role in nerve ... Read more
November 13, 2019
Rare Disease Film Festival Highlights Patient and Researcher Unity
amyotrophic lateral sclerosis (ALS), News
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and ... Read more
November 13, 2019November 13, 2019
Black Tie Optional: Dressing for Success with ALS
Columns, Notes From the ALS Front - a Column by Rick Jobus
In Mark Twain’s book, “A Connecticut Yankee in King Arthur’s Court,” the protagonist, Hank Morgan, is ridiculed during a ... Read more
November 13, 2019November 13, 2019
MRI-guided Focused Ultrasounds Can Safely Open Brain-Blood Barrier in ALS Patients, Trial Shows
News
The non-invasive delivery of ultrasound waves in a controlled, targeted manner can be safely used to open the blood-brain ... Read more
November 12, 2019November 8, 2019
My Tricks for Adding Movement to My Day
Columns, Living Well with ALS - a column by Dagmar Munn
I’m always pleased to read news of advancements in health and wellness for those of us living with ... Read more
November 12, 2019November 12, 2019
Aural, TGen Collaborate on Trial Assessing Effects of Acupuncture on Recently Diagnosed ALS Patients
News
Aural Analytics and the Translational Genomics Research Institute (TGen) will collaborate on a new acupuncture clinical trial to ... Read more

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November 20, 2019November 20, 2019

Kadimastem Seeks to Amend Protocol of its Trial Testing ALS Stem Cell Therapy AstroRx

News

Kadimastem plans to submit an amendment to the protocol of its ongoing Phase 1/2a trial in Israel assessing the use of AstroRx, an “off-the-shelf” stem cell therapy, for the ... Read more

November 19, 2019November 15, 2019

The 4 Ms: My Formula for Daily Living

Columns, Living Well with ALS - a column by Dagmar Munn

When I was diagnosed with ALS in 2010, my doctor told me there was one medication available to help slow the progression of the symptoms. But there was no ... Read more

November 19, 2019November 19, 2019

ALS Association Golden West Chapter Honors Mitsubishi Tanabe for Work into Treatments

News

The ALS Association Golden West Chapter has honored Mitsubishi Tanabe Pharma America (MTPA) with its Essey Commitment to Cures award for advancing research and trials into treatments for amyotrophic lateral sclerosis ... Read more

November 18, 2019November 18, 2019

ALS Prevalent Among Young Veterans Deployed in Post-9/11 U.S. Wars, Study Shows

News

Amyotrophic lateral sclerosis (ALS) is highly prevalent among young U.S. war veterans deployed post-9/11, particularly Air Force personnel, tactical operation officers, and health care workers, a recent study suggests. ... Read more

November 15, 2019November 15, 2019

Aquestive Licenses ALS Therapy Riluzole Oral Film to Zambon in the European Union

News

Aquestive Therapeutics has granted a development and commercialization license to Zambon Pharma for its investigational oral film formulation of riluzole as a treatment for amyotrophic lateral sclerosis (ALS) in the European ... Read more

November 14, 2019November 12, 2019

Calculating Risks While Balancing Family Life and ALS

Columns, Joyful Sorrow - a Column by Kristin Neva

I went parasailing during a vacation in Florida 10 years ago. I talked my brother into going with me, because my husband, Todd, wasn’t feeling up to it at ... Read more

November 14, 2019November 14, 2019

Blocking SARM1 Prevents Neuronal Degeneration in Mice and Cell Models, Study Shows

News

Small molecule inhibitors that block the activity of SARM1 — an enzyme that plays a key role in nerve cell degeneration — prevent the degeneration of axons in mice ... Read more

November 13, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

amyotrophic lateral sclerosis (ALS), News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 13, 2019November 13, 2019

Black Tie Optional: Dressing for Success with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

In Mark Twain’s book, “A Connecticut Yankee in King Arthur’s Court,” the protagonist, Hank Morgan, is ridiculed during a roundtable assemblage for his strange appearance and dress. He is ... Read more

November 13, 2019November 13, 2019

MRI-guided Focused Ultrasounds Can Safely Open Brain-Blood Barrier in ALS Patients, Trial Shows

News

The non-invasive delivery of ultrasound waves in a controlled, targeted manner can be safely used to open the blood-brain barrier in people with amyotrophic lateral sclerosis (ALS), giving temporary ... Read more

November 12, 2019November 8, 2019

My Tricks for Adding Movement to My Day

Columns, Living Well with ALS - a column by Dagmar Munn

I’m always pleased to read news of advancements in health and wellness for those of us living with ALS. But one statement always makes me laugh out loud: ALS ... Read more

November 12, 2019November 12, 2019

Aural, TGen Collaborate on Trial Assessing Effects of Acupuncture on Recently Diagnosed ALS Patients

News

Aural Analytics and the Translational Genomics Research Institute (TGen) will collaborate on a new acupuncture clinical trial to assess how the treatment affects speech in people recently diagnosed with ... Read more