May 22, 2019May 20, 2019
How You Can Get Medicare to Cover Home Healthcare
Columns, Notes From the ALS Front - a Column by Rick Jobus
“What one man can do, another can do.” So said actor Anthony Hopkins, playing the role of Charles Morse ... Read more
May 22, 2019May 22, 2019
Metabolic Changes Do Not Identify Who Will Develop ALS, Study Finds
News
Although people who develop amyotrophic lateral sclerosis (ALS) have altered levels of several blood metabolites — products of our ... Read more
May 21, 2019May 17, 2019
Working Around My Workarounds
Columns, Living Well with ALS - a column by Dagmar Munn
Living with ALS certainly has its challenges, which lead many of us to rely on workarounds. These are ... Read more
May 21, 2019May 21, 2019
ALS Type 8 May Cause Cognitive and Behavioral Changes, Leading to Depression, Study Suggests
News
People with familial amyotrophic lateral sclerosis (ALS) related to the gene VAPB — known as ALS type 8 — can show ... Read more
May 20, 2019May 20, 2019
Using Antibiotics May Increase Risk of Developing ALS, Swedish Study Suggests
News
Using antibiotics may increase the risk of developing amyotrophic lateral sclerosis (ALS), with a higher number of prescriptions linked ... Read more
May 17, 2019May 17, 2019
Phase 3 Trial Results of Tirasemtiv Show Potential of Similar Therapies for ALS, Researchers Say
News
People with amyotrophic lateral sclerosis (ALS) who tolerated higher doses of tirasemtiv showed a trend toward slower decline in breathing ... Read more
May 16, 2019May 16, 2019
Oxford BioDynamics to Use New Technology as Partner in REFINE-ALS Biomarker Study
News
Oxford BioDynamics has joined the REFINE-ALS study, a project designed to detect and measure the levels of specific biomarkers ... Read more
May 15, 2019May 14, 2019
Revisiting Medicare’s Coverage of Home Healthcare
Columns, Notes From the ALS Front - a Column by Rick Jobus
About a year ago, I wrote about how ALS patients may receive home healthcare on an uninterrupted basis, with ... Read more
May 15, 2019May 15, 2019
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
News
With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system ... Read more
May 15, 2019May 15, 2019
Mitsubishi Tanabe Launches Online Tool to Help Patients, Caregivers Find ALS Infusion Services
News
Mitsubishi Tanabe Pharma America (MTPA) has launched a new database that locates healthcare providers, area infusion treatment centers, and ... Read more
May 14, 2019May 10, 2019
I’m Learning to Heed My ‘Aha’ Moments While Living with ALS
Columns, Living Well with ALS - a column by Dagmar Munn
I’ve always believed that I was open to new ways of doing things, but having ALS has put me ... Read more
May 14, 2019May 14, 2019
ALS Therapy Development Institute Launches #AskMeAboutALS Effort for ALS Awareness Month
News
In observance of ALS Awareness Month, the ALS Therapy Development Institute (ALS TDI) has launched a campaign aimed at sparking ... Read more

May 22, 2019May 20, 2019

How You Can Get Medicare to Cover Home Healthcare

Columns, Notes From the ALS Front - a Column by Rick Jobus

“What one man can do, another can do.” So said actor Anthony Hopkins, playing the role of Charles Morse in the movie “The Edge.” He used that mantra as ... Read more

May 22, 2019May 22, 2019

Metabolic Changes Do Not Identify Who Will Develop ALS, Study Finds

News

Although people who develop amyotrophic lateral sclerosis (ALS) have altered levels of several blood metabolites — products of our cells’ metabolism — before disease onset, these changes do not enable ... Read more

May 21, 2019May 17, 2019

Working Around My Workarounds

Columns, Living Well with ALS - a column by Dagmar Munn

Living with ALS certainly has its challenges, which lead many of us to rely on workarounds. These are creative, temporary solutions that solve an everyday problem; I first wrote ... Read more

May 21, 2019May 21, 2019

ALS Type 8 May Cause Cognitive and Behavioral Changes, Leading to Depression, Study Suggests

News

People with familial amyotrophic lateral sclerosis (ALS) related to the gene VAPB — known as ALS type 8 — can show subtle cognitive deficits and obvious behavioral changes, which may lead ... Read more

May 20, 2019May 20, 2019

Using Antibiotics May Increase Risk of Developing ALS, Swedish Study Suggests

News

Using antibiotics may increase the risk of developing amyotrophic lateral sclerosis (ALS), with a higher number of prescriptions linked to greater risk, a nationwide study in Sweden suggests. However, ... Read more

May 17, 2019May 17, 2019

Phase 3 Trial Results of Tirasemtiv Show Potential of Similar Therapies for ALS, Researchers Say

News

People with amyotrophic lateral sclerosis (ALS) who tolerated higher doses of tirasemtiv showed a trend toward slower decline in breathing muscle activity, although the difference was not statistically significant between those ... Read more

May 16, 2019May 16, 2019

Oxford BioDynamics to Use New Technology as Partner in REFINE-ALS Biomarker Study

News

Oxford BioDynamics has joined the REFINE-ALS study, a project designed to detect and measure the levels of specific biomarkers among people with amyotrophic lateral sclerosis (ALS), Mitsubishi Tanabe Pharma ... Read more

May 15, 2019May 14, 2019

Revisiting Medicare’s Coverage of Home Healthcare

Columns, Notes From the ALS Front - a Column by Rick Jobus

About a year ago, I wrote about how ALS patients may receive home healthcare on an uninterrupted basis, with expenses covered by Medicare. Since then, there has been both ... Read more

May 15, 2019May 15, 2019

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News

With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose rare diseases have already been ... Read more

May 15, 2019May 15, 2019

Mitsubishi Tanabe Launches Online Tool to Help Patients, Caregivers Find ALS Infusion Services

News

Mitsubishi Tanabe Pharma America (MTPA) has launched a new database that locates healthcare providers, area infusion treatment centers, and in-home infusion services, with the goal of providing a one-stop ... Read more

May 14, 2019May 10, 2019

I’m Learning to Heed My ‘Aha’ Moments While Living with ALS

Columns, Living Well with ALS - a column by Dagmar Munn

I’ve always believed that I was open to new ways of doing things, but having ALS has put me to the test. My pride and a little denial have ... Read more

May 14, 2019May 14, 2019

ALS Therapy Development Institute Launches #AskMeAboutALS Effort for ALS Awareness Month

News

In observance of ALS Awareness Month, the ALS Therapy Development Institute (ALS TDI) has launched a campaign aimed at sparking more discussion about the progressive neurological disease. A leading non-profit ... Read more