Top Scientist and Tattooed Patient Jointly Spur ALS Research in Sweden
Sweden, a nation of 10 million people, is becoming a major force in European ALS research through the recent…
Articles by Hal Foster, PhD
‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases
Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their…
Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients
The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow Macedonians with rare diseases were so…
World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his…
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare…
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
People with rare diseases know that the right government policies can make a big difference in the quality of their…