State ALS Registries Collect Valuable Data, but Few Are in Process
Patient registries help record how many cases of a particular disease there are across the country, and many also log…
Articles by Hawken Miller
Technology Helping to Make Registries, Databases More Efficient
In amyotrophic lateral sclerosis (ALS), as in many diseases, patient registries, biorepositories, and…
Big Data a Source of Better ALS Insights, Trials, and Hope
Healthcare has long harnessed the power of big data. Examples range from the Human Genome Project, a worldwide 13-year effort…
Working to Make Sure ‘Another Loving Father’ Isn’t Lost to ALS
Tara Gottlieb lost her father to amyotrophic lateral sclerosis (ALS) in November, but the Massachusetts resident said she’s only just…
List of Rare Diseases Tops 10,000 – and Is Growing – New Analysis Finds
Nonprofits, scientists, governmental organizations, and the rare disease drug development industry have long cited…
Teen Puts Pen to Paper to Lift Spirits of People With ALS
High school student Cole Spector is giving people with amyotrophic lateral sclerosis (ALS) a reason to smile by becoming…
Ironman Competitor Unable to Complete Race Lends a Hand, Finishes a Hero
Note: This story was updated June 16, 2022, to reflect that competitor Kyle Brown was not disqualified, but did not…
Performer With ALS Returns to Acting for ‘Reel’-life Diagnosis
Lisa Cross thought having amyotrophic lateral sclerosis (ALS) meant she would have to give up on acting and the…
‘I Will Always Be Me’ Allows People to Voice Bank With Feeling
A partnership between Rolls Royce and the U.K.-based Motor Neurone Disease (MND) Association is helping people with amyotrophic…
Activities to Build ALS Awareness, Grow Community Will Mark May
More than 5,000 people are diagnosed with amyotrophic lateral sclerosis (ALS) each year, and the out-of-pocket costs of care…