The power of distraction when dealing with negative emotions
I’ve lived in the shadow of my husband Todd’s ALS for the past 13 years. My days have…
Articles by Kristin Neva
When those of us living with ALS become someone’s Calcutta
“Find your own Calcutta. Find the sick, the suffering, and the lonely, right where you are — in your…
Sharing our vulnerability opens our hearts to one another
Last week, I set my husband, Todd, up on his computer before heading out for my weekly ukulele group. It’s…
Celebrating our 20th wedding anniversary is bittersweet with ALS
While many couples celebrating an anniversary post joyous messages and proclaim their excitement about the future on social media, I…
A 6-year-old’s childhood innocence confronts his great-uncle’s ALS
We had a young visitor this past weekend who met my husband’s disability with frank curiosity and innocent sweetness.
Why we fight for life: We do it because we’re human
One evening last week after I’d finished cooking dinner, I grew concerned. My almost 14-year-old son had gone out to…
4 actions that have helped me cope with my husband’s ALS
The years since my husband, Todd, was diagnosed with ALS have been hard for both of us, not only…
Planning for future ALS progression while not borrowing trouble
My husband, Todd, is paralyzed because of ALS, so I transfer him from bed to wheelchair, and from wheelchair…
On my birthday I had everything I wanted
A couple weeks ago, a friend asked me, “What are you going to do for your birthday?” “We’ll just have…
Reminiscing about our pre-ALS days brings joy
A family friend visited last week, prompting a trip down memory lane to the days long before my husband, Todd,…