Kristin Neva

Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.

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Articles by Kristin Neva

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How I stimulate my mind while caring for my husband with ALS

After my husband, Todd, got ALS and I became his caregiver, I turned to reading and writing as a…

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My husband doesn’t get out much, but he enjoys following Comet’s secret life

When we got our goldendoodle, Comet, as a puppy almost 13 years ago, my husband, Todd, walked him around our…

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A novel helped me process heavy questions I face as an ALS caregiver

I brought “Some Bright Nowhere” by Ann Packer with me to Florida as my spring break beach read, but it…

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When an ALS caregiver takes a much-needed break from the daily routine

I left my husband, Todd, at home in Michigan last week while I flew with our teenage son to Florida…

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Frustration mounts when ALS assistive technology isn’t so helpful

When my husband Todd’s new power wheelchair was delivered, he tried a device that allowed him to control it…

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In life with ALS, we find moments of ‘genius’ to keep our minds active

My husband, Todd, and I work on New York Times puzzles while we eat breakfast. I sit next to him…

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After 15 years as an ALS caregiver, I’m still learning from others

After living with my husband Todd’s ALS for more than 15 years, shouldn’t I be better at navigating this…

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A story of a family’s loss offers guidance amid my grief with ALS

The outside temperature was cold, just 15 F, but the sun was shining, so I decided to forgo my elliptical…

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Dealing with loss, both big and small, in life with ALS

There are both big and little losses that come with ALS, for the person with the disease and their…

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Tossing and turning over fears this ALS journey has come to its end

Wake me up if Todd is in distress,” I said to his nighttime caregiver. “Of course,” she replied. It’s not…

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