People with ALS should be able to proactively get feeding tubes
After my husband Todd’s ALS diagnosis in 2010, we regularly monitored the forced vital capacity (FVC) of his lungs.
Articles by Kristin Neva
Considering the fragility of life, with or without ALS
In 2012, two years after my husband, Todd, was diagnosed with ALS, he and I made a trip to…
Prioritizing comfort as we continue settling in for the ride with ALS
After my husband, Todd, was diagnosed with ALS, we moved closer to my parents because we knew we’d need…
A well-oiled machine with training and checklists for ALS caregivers
“You really have everything figured out,” one of my husband Todd’s new caregivers said as I was helping her transfer…
Marking the 15-year anniversary of an ALS diagnosis
A week ago Wednesday, on the 15th anniversary of his ALS diagnosis, my husband, Todd, had a dentist appointment.
Finding comfort in AI: Using ChatGPT to cope with ALS grief
Someone in an online caregiver support group posted that they were finding value in using ChatGPT as a therapist. Other…
Searching for wisdom in the woods as we navigate ALS
A few weeks ago, I visited the Paavola Wetlands Nature Area a few minutes from my home. A local group…
Finding balance in life with ALS during an unusually full weekend
We had a whirlwind of activity this past Memorial Day weekend, with friends visiting from out of town. We…
Just what does coping mean when you’re living with ALS?
My husband, Todd, hasn’t left our home since a dentist appointment last fall, and he hasn’t been to the park…
Seeing the rhythm of my life as I navigate ALS
I keep playing a new song by Bon Iver. Once my husband, Todd, who has ALS, is set up…