Rare Disease Patient Groups Unite to Preserve Orphan Drug Tax Credit in US
The National Organization for Rare Disorders (NORD) says it’s “disappointed and dismayed” after the House of Representatives voted 227-205…
Articles by Larry Luxner
Children’s National, NORD Partner to Create Rare Disease ‘Centers of Excellence’
Children’s National Health System no longer treats just kids. Its Rare Disease Institute, launched in April 2017, has partnered with…
#NORDsummit – Alternatives to Large Placebo Trials, Grant Awards Among Ways FDA Supporting Rare Diseases, Chief Says
More therapies are now available for the 30 million or so people with rare diseases in the U.S. than ever…
#NORDsummit – Despite Criticism, Orphan Drug Act Is Working to Advance Needed Treatments, FDA Says
As Congress begins debate this week to overhaul the U.S. tax code, lawmakers should leave the Orphan Drug Act (ODA)…
Radicava Hopes, Expectations from NFL’s William White and Doctors at Ohio State
William White, who entered Ohio State University on a football scholarship, played for the Buckeyes and earned an engineering degree before…