We Have No Guarantees with ALS, but We Do Have Choices
“What? But there’s a guarantee on your website,” I told the customer service representative for the herbal company. I had requested a refund of a digestive supplement because it didn’t work for me.
He repeated his scripted line: “That product is nonreturnable because it’s consumable.”
“Wow!” I couldn’t believe my ears. I appealed to his reason and asked him to look at his company’s website.
It was impressive, and so were the testimonials, but what sold me was the “180-day money-back guarantee.” I checked the FAQ page to see if there were any strings attached. “If it doesn’t work for you, call customer service and get your money refunded, no questions asked.”
“It doesn’t matter what the website says,” the rep told me.
I asked to talk to his supervisor. He put me on hold, but the supervisor didn’t pick up.
I was upset. I had been sold a lie. I was the victim of false advertising, a guarantee that the company wouldn’t back up.
It wasn’t the first time that I had been disappointed in a guarantee.
Ten years ago, my husband, Todd, and I were in good health. Todd had a decent job, and we lived in a beautiful bungalow with our two young children. We were living the American dream.
I didn’t know it at the time, but I had unwittingly bought into the prosperity gospel. We weren’t perfect, but we were trying to do good in the world. We loved each other, our kids, and our neighbors. God was blessing our lives.
Then Todd was diagnosed with ALS at just 39 years old. He was told that he’d likely live only another two to five more years. There was no cure or treatment.
I was so disappointed in God.
I found a blog by a young youth pastor I had worked with in Chicago. He lost his wife to cancer. Like us, they had two small children. I read through tears about their journey and her eventual death.
“It’s so unfair,” I told Todd. “They were following God. Good marriage. Happy family.”
“So, you think it would be fairer if only drug dealers got sick?”
Yup. If only there were a correlation. If you break the law, you get ALS. Cheat on your spouse, get cancer.
It seems like that’s how life should work. You reap what you sow. Do what’s right, and blessings will come your way.
But that’s not how life works. God doesn’t guarantee wealth and health, but it’s so easy to fall into those belief patterns because it’s almost become part of the human psyche, a promise of the American dream.
Work hard, and you’ll succeed. Take care of your body, and you’ll be healthy.
Everybody at some level buys into a philosophy of self-determination. Life does work when we make good choices — until it doesn’t.
And then disappointment sets in. We are stuck in that gap between expectation and reality — the higher the expectation, the greater the disappointment.
Life happens, and the American dream turns into a nightmare. When tragedy strikes, life becomes too complicated for easy answers and banal sayings. We may find ourselves in a crisis of meaning. Some people want to give up, and that sense of nihilism can extend to others. Some people get mean. Couples divorce.
Where do we go from here?
We must fight and refuse to give up. We keep trying and doing what’s right. But we adjust our guiding philosophy to something more realistic than cheap slogans and worthless guarantees. We find something true that still demands our agency.
Here it is: Life is hard. It’s unfair. But we can make it better than it could be by the choices we make.
Try to improve your situation. Practice gratitude. Sacrifice yourself for others.
Find purpose and meaning by living with love for the sake of our fellow humans and our own hearts.
We know that we can make it better than it could be because we see the results when people make the wrong choices.
People can make choices. That’s my message of hope. Todd and I choose to be kind to each other and our kids. We have agency, even in the dire war zone of ALS.
By the way, I did get my refund, thanks to the power of social media and a comment I made on the company’s Facebook page. The company was apologetic and promised it would never happen again. If only I had that much influence with God as I pray for Todd’s healing.
Note: ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to ALS.