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What do you do after you are diagnosed with ALS?
We’ve posted topics on how ALS mimics other diseases and how it is difficult to diagnose. The process is long, and patients end up seeing numerous doctors and having a lot of test, some not so fun. What happens after you are diagnosed? There are a number of members that have been recently diagnosed. When you received your diagnosis did your doctor provide you and your family resources? Did they help you with problems related to insurance? What about ways to take care of yourself ? The ALS Association has a page dedicated to this type of information and more. http://www.alsa.org/als-care/newly-diagnosed.html If you find other resources out there please post links or phone numbers so that other members can reach out. If you are looking for help in a specific area and are having a difficult time finding assistance, post here so that we can ask around and other members can chime in with ideas.
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