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How do you handle variations in caregiver skills in regard to your ALS?
In James Clingman’s recent column, he talks about some of the difficulties he’s had to experience while spending a month in a healthcare facility. He chose to check in to the facility to give his wife (and caregiver family) a respite from their duties. But he’s found a wide range of responsiveness from the facility’s staff – – especially concerning his needs with ALS. Have you experienced inconsistency from aides and staff in a healthcare facility in regard to their knowledge of ALS? If so, what did you do? Do you have advice for others?
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1 Reply
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The website Your ALS Guide has detailed guidelines written for paid caregivers. It can be found here:
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