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  • ALS travel tips and woes

    Posted by Dagmar on May 20, 2025 at 1:01 am

    With summer almost here, many of our forum members are busy making travel plans. Every year, transportation and accommodation options improve– and some (unfortunately) don’t.

    What experiences have you had while traveling with ALS? Do you have any tips to share with us?

    Patricia Koopmans replied 2 weeks ago 2 Members · 2 Replies
  • 2 Replies
  • Dagmar

    Member
    May 20, 2025 at 3:07 pm

    It’s been over a decade since I travelled cross-country with my ALS needs. At that time, hotel/motel accessible rooms were available but inconsistent in true accessibility. Especially the bathrooms – – towel bars standing in for grab bars, walk in showers with poorly placed grab bars, and flimsy shower seats placed faaaar away from the faucet handles. I wonder if current traveling pALS have found things have improved at all?

  • Patricia Koopmans

    Member
    May 22, 2025 at 2:47 pm

    One tip, if you are still transferring with a walker, I used the commode chair in the shower on a cruise ship so I could push myself up with my arms. Worked great.

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