ALS News Today Forums › Forums › Living With ALS › People with slow ALS progression › When did you first know you were a slow progressor? › Reply To: When did you first know you were a slow progressor?

  • BC11

    Member
    June 4, 2025 at 10:43 am

    I am new to the forum and am a slow progressor. Was not initially diagnosed with ALS until Jan 2025 which was 4+ years since onset of symptoms, in part due to slow progression. For a time it was thought to be CIDP and I received IVIG for 14 months. Genetic test shows the SOD-1 mutation and I just started on Qalsody in April 2025.

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