ALS News Today Forums Forums Living With ALS Do you crave more social activities or solitude?

  • Do you crave more social activities or solitude?

    Posted by Dagmar on July 8, 2025 at 1:01 am

    Even though I do a lot on social media to help support the ALS community and am very much in the public eye, I happen to enjoy solitude. I know that we pALS need to avoid isolation, but going to social events and being around lots of people just wears me out. If you’re like me, what do you do?

    As a pALS or if you are a caregiver, do you wish to have more social contact or activity, or do you crave solitude and “alone time?”

    boj replied 2 days, 18 hours ago 2 Members · 2 Replies
  • 2 Replies
  • Dagmar

    Member
    July 10, 2025 at 12:19 pm

    Actually, I don’t mind busy events with lots of people, but I do need a few days afterwards to recover – – low activity, solitude, rest, etc.

  • boj

    Member
    October 9, 2025 at 7:43 pm

    I feel as though my capacity to enjoy social gatherings is diminishing as my voice is diminishing. I am unable to project my voice in a noisy environment. One on one suits me better. I like having company but I’m only good at visiting for about two hours then both my voice and my energy are exhausted.

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