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What coping strategies or habits help you manage your ALS symptoms?
Managing ALS symptoms can take creativity, resiliency, and patience. Over time, many people develop their own strategies that help them cope. Much of what I write in my “Living Well with ALS” column is about the many strategies I use to cope with the condition.
What coping strategies or habits help you manage your symptoms most effectively?
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4 Replies
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One of the ways I cope is to ask myself – – what changed, who or what can help me, is this ALS or something else not related to ALS… ?
I also view things with humor… lots of humor.
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My faith and my sense of attitude are my coping methods. With my faith, either way, I’m a winner. I don’t think anyone wants to be around a whiner. I try to be upbeat and positive. I want people to smile when they think of me.
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Managing symptoms can be a challenge at times! In the beginning I just kept trucking along and not focusing on symptoms until they became problematic. Perhaps there was a bit of denial going on. Now, I try to track symptoms and report then to the doctors as soon as I can. My voice has become raspy and at times I’m difficult to understand. I assumed that it was ALS. Last week I had a swallow test and I was happily surprised to learn I have acid reflux. Apparently it’s a pretty good case of it too! The SLP said there was a little muscle weakness, but not enough to be causing the symptoms I reported. Now, I’m learning to tackle symptoms head on!
Amanda
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Faith in Jesus and my attitude are my coping tools
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