ALS News Today Forums Forums Living With ALS Dry mouth Reply To: Dry mouth

  • theg

    Member
    June 18, 2024 at 7:49 pm

    On November 1 if ‘23, at my 3rd visit to Scottsdale Mayo Clinic, I had a Botox injection. A full dose rated at 5000. It takes about a week for it to kick in, and as luck would have it, it happened during the afternoon of November 6, a full day and half before I had the feed tube surgery at 8:00 am on November 8.
    On November 7, I could not eat or drink anything. My mouth was locked up with drymouth. I lost 10 lbs and was so dehydrated when I entered the surgery room for the tube surgery. They right away put me on IV for hydration.
    Ok, fast forward to the recovery room. One of the pluses was the afternoon nurse (or aid) that showed me a few trick for dry mouth. She brought me a glass of crushed ice, and I had to use very small pieces because I couldn’t swallow water. She also brought me several Sage Toothette oral swabs to dip in water and put in mouth.
    The next morning the floor Doctor recommended my wife go down to the gift shop and purchase an item called Xylimelts for dry mouth. It’s a round disk that you place between your cheek and gum, and it sticks to cheek and slowly dissolves. Place it with the indent towards cheek. I’ve purchased it at Walgreens