ALS News Today Forums Forums Living With ALS Are you covering up your ALS symptoms in social situations? Reply To: Are you covering up your ALS symptoms in social situations?

  • deb-winters

    Member
    November 7, 2024 at 6:31 pm

    I have been living with a LS for 2 1/2 years. My dominant hand is unable to work at all, my left hand is getting weaker. This to say, eating out and eating in front of others can be a challenge. In addition, I use a cane / crutch to walk. I wear a name badge that says Deb Winters, living with ALS. While I don’t enjoy the deficits I’m learning to live with, they are not of my choosing or design. I don’t exaggerate them in any way ever! For instance, I don’t order soup in public. However, I proudly and gladly answer questions of other adults, and particularly of children who I catch looking. I know their adults are listening as well. Education and awareness of ALS and the challenges it provides is critically important in our culture. Take a moment – answer questions – point people to a resource. Let them know how they can help and make a difference.