ALS News Today Forums › Forums › Living With ALS › People with slow ALS progression › When did you first know you were a slow progressor? › Reply To: When did you first know you were a slow progressor?

  • Styxie

    Member
    June 6, 2025 at 1:08 pm

    I am going to be treated at Northwestern in Chicago. My first visit with the ALS specialist is July 9. Can you tell me anything what they do with your first visit or do they put you on medication or I’m so confused? I have no idea and then how often do you have to visit them or do they send you the PT I had foot drop about it year and a half ago and that’s what they thought it was and now is my leg weakness in my right leg after many doctors visits to many different doctors. I finally went to Mayo and they diagnosed it now they’re sending me to an ALS specialist Please help.

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