ALS News Today Forums › Forums › Living With ALS › People with slow ALS progression › Your questions and tips (slow progressors) › Reply To: Your questions and tips (slow progressors)
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I was classed as a ‘slow progressor’ this year having had symptoms and repeated PT since late 2019. I have good days and not so good days. Generally, if I have a very bad day, I will notice a loss of something that I was able to do previously and it can be small, but still noticeable( like putting my left earring in). I do constantly self monitor if I am not engaging my brain in something else.
The last 6 weeks I have had unbearable itchyness/rashes and have tried new oatmeal soap, , a filter on the shower, the dermatologist, the primary doctor, a course of steroids, and even stopped the riluzole. Is there a connection to this itchy rash that comes and goes? Has anyone experienced this? I will call the clinic next week, but thought I would try to sort it out first.