Viewing 2 reply threads
  • Author
    Posts
    • #21319
      Dagmar Munn
      Keymaster

      (from an article in ALS News Today)
      “The National Institute of Neurological Disorders and Stroke (NINDS) is asking people across the amyotrophic lateral sclerosis (ALS) community to submit their preferences regarding what should be prioritized to accelerate ALS research.

      NINDS, which is part of the National Institutes of Health (NIH), is seeking contributions from ALS patients, families, caregivers, advocates, investigators, and clinicians. The agency’s overarching goal is to identify what the community holds as its highest priorities for research into more effectively diagnosing, treating, managing, and preventing ALS.” Read the full article here: https://alsnewstoday.com/news-posts/2022/01/17/ninds-invites-als-community-set-us-research-priorities/

      Questions for our forum members:
      – What suggestions would you offer?
      – What do you think of this opportunity?
      – Do you want to see more ALS/MND organizations follow this process?

    • #21324
      Judy Weger
      Participant

      work on familial als first  9c orf 72

    • #21325
      Laurel Linton
      Participant

      I agree that familial C9 would be a good place to start!

Viewing 2 reply threads
  • You must be logged in to reply to this topic.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account