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    • #21319
      Dagmar Munn

        (from an article in ALS News Today)
        “The National Institute of Neurological Disorders and Stroke (NINDS) is asking people across the amyotrophic lateral sclerosis (ALS) community to submit their preferences regarding what should be prioritized to accelerate ALS research.

        NINDS, which is part of the National Institutes of Health (NIH), is seeking contributions from ALS patients, families, caregivers, advocates, investigators, and clinicians. The agency’s overarching goal is to identify what the community holds as its highest priorities for research into more effectively diagnosing, treating, managing, and preventing ALS.” Read the full article here:

        Questions for our forum members:
        – What suggestions would you offer?
        – What do you think of this opportunity?
        – Do you want to see more ALS/MND organizations follow this process?

      • #21324
        Judy Weger

          work on familial als first  9c orf 72

        • #21325
          Laurel Linton

            I agree that familial C9 would be a good place to start!

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