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I have an autistic, intellectually disabled son. Resources for helping him?
Hello all! (FYI -The last time I posted the formatting came up all wonky, hope it doesn’t happen again, I couldn’t fix it).
I’m labeled as “clinically probable” ALS right now, going to a multidisciplinary ALS clinic next week for 2-day exhaustive testing to confirm.
I’ve not been doing well, it’s obvious I’ve been ill, and am on 24 hour oxygen. I have 3 kids, but it’s my 21 year old autistic, intellectually disabled son I’m most concerned about. I know he has no idea what’s happening to mom, but he’s not “stupid,” he knows something is wrong and I must find a way to help him understand.
Typically with autistic kids you use something called “social stories” to help explain things that are happening that they might not understand. I could also use short, simple books meant for children that could help. However all I’m finding are books to help children understand when a parent is going through cancer – which is obviously not the case here.
I really really could use some help finding resources to use to help my son explain what’s happening, what to expect down the line, etc. Even if they’re not specifically ALS related (but that would be perfect), just something to help explain how mom (a parent) is terminally or seriously ill in a way he can understand (he’s at an approximately elementary school level as far as intellectual understanding).
If anyone can help me with this, I would be SO grateful. Thank you!
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