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  • Maintain/Gain Weight

    Posted by mahone on February 18, 2025 at 2:02 pm

    What foods do you eat to maintain or gain weight?

    Im havig a hard time maintaining weight. I have lost about 50 punds such March 2024 when I was diagnosed with Bulbar onset of ALS..Any suggestions would be appreciated…..Mike

    ron replied 4 days, 3 hours ago 3 Members · 2 Replies
  • 2 Replies
  • Alton Craig Peterson

    Member
    February 20, 2025 at 2:26 pm

    I have had ALS for 4 years and have gained 40 pounds since I was diagnosed. I eat much sugar with crackers, MM’s, Chocklet Almounds, and a Milk Shake or Malt each day.

    • ron

      Member
      February 20, 2025 at 2:57 pm

      I’m probably in my 5th year, 3 years since diagnosis. I have limb onset and have maintained weight steadily. My doctors impressed upon me greatly the need to have a feeding tube placed asap, which I did, but don’t yet use. A recent study has demonstrated that those taking Riluzole and consuming a high glycemic diet experience significantly longer survival. Waiting too long to place the feeding tube may make it impossible to do so, as we may not wake up. Please check with your doctor on that matter. Best wishes on your journey.

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