ALS News Today Community Forums ALS Progress Research Topics Poorer Outcomes in ALS Patients Linked with Early and Rapid Weight Loss

  • Poorer Outcomes in ALS Patients Linked with Early and Rapid Weight Loss

    Posted by Community Member on August 26, 2019 at 11:11 am

    A study in ALS patients on mechanical ventilation linked rapid weight loss early in disease course to a greater loss of communication and other skills. Read more about the study and its findings here.

    What do you think of these findings?

    Community Member replied 6 years, 9 months ago 2 Members · 1 Reply
  • 1 Reply
  • Community Member

    Administrator
    August 28, 2019 at 12:25 pm

    Quoted from the article:

    “Many factors are known to influence outcomes in ALS, including age at disease onset, the body region most affected at onset, delays in the diagnosis, functional test scores, and those impacting nutrition and psychological well-being.”

    So, low BMI at diagnosis and rapid weight loss are only one indicator. These can be addressed by focusing on what is causing the weight loss: inability to eat/drink? – – then make food modifications or use a PEG. Inactivity? – – then initiate a physical movement regimine. Low calorie foods? – – then eat high calorie foods.

    To me, this study proves that if you don’t do anything to correct the problem – – it only gets worse.

     

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