[Bev]

<p style=”text-align: left;”>I have an upwalker for sale in Ontario Canada.  Its made in California. I had to go across the border to pick it up. Not available in Canada. If interested text me 519-988-9111</p>

[Bev]

Richard,
No mention of human trials. But sounds promising!

[Bev]

Hi Dagmar
My speech therapist ordered this device for me to strengthen my lips and tongue. Has anyone tried this yet?

https://www.google.com/url?sa=t&source=web&rct=j&url=https://getabilex.com/&ved=2ahUKEwjNqNaxi6fqAhUQc98KHRMKCM4QFjAAegQIBBAB&usg=AOvVaw1THG-1KuLIU-u5slpYg3tG&cshid=1593437642011

[Bev]

Hi all, intetesting topic. Im hopeful for approval by the fda for nurown. Due to the cost I doubt the insurers will cover. Thats too bad for all of us. As far as administration of the cells I hope they Brainstorm tests the delivery to the exact part of the brain using mri focused ultra sound. That may be more effective than injecting to the spinal chord and may be safer too. Im a canadian citizen so if the fda approves it we will soon follow hopefully.

[Bev]

Hi Mikael, like Susan they diagnosed me at first with spinal stenosis. PLS has many similar symptoms as ALS. I’ve had a leg brace to prevent hyper extension of my knee and an Ankle Foot orthotic. Now I’m trying a build up shoe on my shorter leg to make it easier for me to walk with a walker. Not much difference between the length of my legs but I’ll try anything to walk more comfortably and stable.

I understand yr frustration seeing many specialists. Many drs don’t have good bed side manners. You are an expert in yr normal. trust yr instincts

[Bev]

Hi Mikael,

why do you suspect you have bulbar issues.

My symptoms started with my right leg and hand. I noticed when I was slow writing and doing up buttons on my police.

I got into a health kick with exercise and diet. I ate tilapia about 5 times a week and took fish oil capsules. I believe that caused an imbalance in my body with the mercury and other toxins. Neurologist disagreed with my theory but what do they know.

Have you had an MRI of yr cervical spine. My discs in my neck were compressing my spinal chord too but I had no pain so was unaware. I had surgery in 2010 to correct that and I improved but my balance didn’t so I fell many times.

Good luck on yr journey getting diagnosed Mikael.

Bev

 

 

 

[Bev]

hi Mikael

I have been diagnosed with PLS. Primary Lateral Sclerosis. my emgs are clear too for ALS. I have spasticity and poor balance so I fell and hit my head many times. now I’m non verbal for 6 years now.

hope this helps.

Bev

[Bev]

why can’t neurown stem cells partner with this. delivers stem cells directly to the damaged areas

[Bev]

<p style=”text-align: right;”>so many disease mimic the symptoms of ALS. I just had an emg after 10 years following symptoms and it still points to PLS. I lost my balance and fell numerous times and eventually lost my ability to speak. I had head trauma in 2 traumatic falls. Speech therapy failed and I’m not eligible for clinical trials because I don’t have an ALS diagnosis. PLS is a catch all diagnosis, a type of monally.</p>
<p style=”text-align: right;”></p>
 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

[Bev]

Hi Dagmar,

You didn’t mention MRI focused ultra sound trial for ALS at sunnybrook hospital in Toronto On Canada. They have proved they can open the blood brain barrier temporarily to deliver stem cells or drugs to the exact area of the brain. I’m hoping brain storm Therapeutics will use that method in their trials someday. I was diagnosed with PLS so don’t qualify for any trials but I’m hoping to benefit from nurown some day.

thanks for all you do for to inform us.

Bev

[Bev]

<p style=”text-align: right;”>3</p>

[Bev]

<p style=”text-align: center;”>4</p>

[Bev]

I dont know rollator that can work on sand. I got the upwalker and it goes on rough terrain. Although I’ve only used it and carpet and tile. It makes me walk upright instead of a stooped position. I also purchased a portable power wheelchair that folds up and can be put in the trunk of a car.  It weighs 50 lbs. Go to wheelchair.com to view it if interested and google upwalker.

[Bev]

I think head trauma and chemicals play a part. As well toxicity from eating fish from farms in Asia such as tilapia and some fish oil capsules. Researchers found species of bacteria and fungi living in the central nervous system of patients with ALS.  Anyone have any common bonds with eating too much fish and multiple head trauma throughout life?