Overview
Managing ALS goes far beyond routine doctor visits and medical checklists. Clinical metrics can track disease progression, but they fail to capture the real story: what it actually takes to navigate daily life with ALS as a family and care team.
In honor of National Family Caregivers Month, this family conversation offers a rare, authentic look behind the scenes with the people who truly get it — the caregivers who help make independent living possible. Real insight comes from an intimate, candid conversation with acclaimed actor and producer Russell Andrews, his partner Erica Tazel, and his family, alongside the leadership and support team at the ALS Network. Together, they share what multi-generational teamwork, balancing career and caregiving, and navigating systemic support actually looks like in real time.
The true experts are the people living and caregiving every single day. Join our advocates, caregivers, and community leaders as they talk openly about relationships, accepting care, family dynamics, organizational resources, and real-world independence.
Speakers
Moderator
Juliet Taylor
Juliet Taylor is a writer, ALS advocate, columnist for ALS News Today, and former caregiver to her late husband. Juliet draws on her personal journey and marketing background to champion caregiver support, volunteer with national ALS organizations, and amplify lived experiences within the community.
Panelist
Russell Andrews
Russell Andrews is an acclaimed actor, director, producer, author, and founding member of StageWalkers Productions living with ALS. Russell serves as an advocate and spokesperson for the ALS Network, sharing he and his family’s story to raise awareness, improve visibility, and connect others with critical support and community.
Panelists
Erica Tazel & Anya and Kai Andrews
Erica Tazel is an actress and fiancée to Russell. Erica offers insights on balancing caregiving, a professional career, and personal well-being.
Anya and Kai Andrews are Russell’s adult children and family caregivers. They discuss the multi-generational impact of ALS and the teamwork involved in supporting their father’s care journey, in-person and at a distance.
President and CEO of the ALS Network