My Week Living by the Numbers
I recently volunteered to participate in the Precision Medicine Program (PMP) of the ALS Therapy Development Institute (ALS TDI). I chose them because all of their funds go toward research, I…
Living Well With ALS
— Dagmar Munn
When Dagmar Munn was diagnosed with ALS at the age of 59 in 2010, she tapped into her nearly 30 years of professional health and wellness experience. She not only follows her own advice but also inspires and teaches others to do the same. In addition to her columnist role, she is one of the moderators for the ALS News Today Forums and writes a personal blog called “ALS and Wellness.” She lives with her husband in Green Valley, Arizona, enjoying finding humor in life’s situations and spending free time pursuing creative projects in fiber arts.
Featured Post
What time well spent looks like in life with ALS
One of the interesting mental challenges I continue to experience as I live with ALS is its effect on my perception of time. The predicted prognosis of living only two to five years after…
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With ALS, Self-care Is Vital for Well-being
As a newly diagnosed ALS patient attending an ALS clinic, I received a packet filled with various brochures and helpful information. Attached to one pamphlet I found a small card with…
Tap into Your Inner Astronaut for Resilience
What do we have in common with an astronaut who is trying to survive while stranded on a hostile planet? Answer: We share the ability to tap into our resourcefulness, resiliency, and…
Making a New Friend with Help from a Boogie Board
Last week, I had the opportunity to attend a fun, social, gala event. Even though the occasion was filled with presentations and entertaining activities, my best take-home memory came from the special…
Learning How to Speak (and Breathe) with Ease
Last month, I read a blog post from the ALS Association that made me sit up and pay attention. It told the story of a woman with ALS-related voice issues who…
How to Coach the Coach: Make It a Sandwich
Quality caregiving and care-accepting depend on effective communication between parties. It’s a delicate balancing act, especially when the caregiver is a spouse or family member. With traditional roles reversed, misunderstandings can…
Time Matters
Among the many challenges I experienced during my early months with ALS was its effect on my perception of time. Before ALS, I pretty much meandered through life in full confidence that…
How to Revive Your Daily Life Routines
I’m one of those folks who follow daily life routines. Simply put, it’s a series of predictable habits that bring structure to my life and help me maintain a positive attitude while…
Top ‘Living Well with ALS’ Posts of 2017
With 2017 quickly coming to a close, I decided to learn a little more about my readers and which of my posts were the most popular. While scrolling through the numbers I…
Seize the Day and Chase Winter Doldrums Away
Seize the Day! Lately that’s been my morning mental mantra. I visualize it as a chant and it’s the secret weapon I use every December to help me adjust to the…
Join the ALS Boogie Board Club
OK, so now I’m an official member of the ALS Boogie Board Club! No, it’s not a club for surfer-dudes with ALS. I’m using a Boogie Board Jot 8.5 eWriter, a unique gadget…
The One Thing to Always Bring to the ALS Clinic
Last week I spent a few hours visiting with my medical team at the ALS Clinic. Usually I leave feeling a bit tired from all the testing and chatter, but…
