Former ALS Association affiliate is now ALS United Greater New York

Transformational rebranding represents break from former ALS organization

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by Mary Chapman |

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To reflect a new era of commitment and determination in the fight against amyotrophic lateral sclerosis (ALS), The ALS Association Greater New York Chapter has become ALS United Greater New York.

The rebranding of the New York City-based nonprofit represents a break from the ALS Association, to which the former chapter group belonged for 28 years. ALS United Greater New York joins with 14 other former association affiliates to form ALS United.

The new, independent New York organization called the change a “transformation” and a bold step forward in its ongoing mission to find a cure for the progressive neurodegenerative disorder and support patients, families, and caregivers. The move also reflects advances in ALS care and research and will enable broader advocacy of policy changes of importance to the ALS community, the organization said.

ALS United Greater New York will continue to provide local support to ALS patients and help to drive innovation and accelerate research.

“This is more than a name change; it signifies an evolution for the organization. It represents an exciting future, building upon our decades-long legacy as a trusted resource and re-emerging as one of the largest, local ALS patient service organizations in the nation,” Kristen Cocoman, president and CEO of ALS United Greater New York, said in a press release from the organization.

“As science advances so has our approach to care services, including the launch of more support groups, educational programs, financial support grants, and equipment and communication resources for those living with ALS and their families. Our partnership with 10 regional ALS clinics and centers allows us to take part in providing state-of-the-art care and clinical management services to families living with ALS.”

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Other founding ALS United members

The launch follows the organization’s 2023 legal separation from the ALS Association, an act joined by 14 other association chapters across the U.S., to form ALS United, a membership organization for patients and their families. A website for ALS United is being developed, ALS United Greater New York told ALS News Today.

In addition to ALS United Greater New York, the founding members of ALS United include ALS Arizona, ALS United Central & Southern Ohio, ALS Golden West, ALS of Nevada, ALS New Mexico, ALS United North Carolina, and ALS United Orange County. Others are ALS United Rhode Island, ALS United Rocky Mountain, ALS United Greater Chicago, ALS United Connecticut, ALS United Georgia, ALS United Mid-Atlantic, and ALS Northwest.

ALS United Greater New York, which collaborates with fellow chapters, services Greater New York-area patients and families, including those in New York City, Long Island, the Hudson Valley, Westchester County, and northern and central New Jersey.

Formerly known as ALS Greater New York City, the organization joined the ALS Association in 1995 and changed its name to the ALS Association Greater New York Chapter.