#ERDC2018 – New EU Law to Protect Patient Data Could Affect Rare Disease Registries

How I Cruise Through the Slow Lane of ALS

There’s no doubt about it — living with ALS has sure slowed me down! And if you have ALS, you probably feel your life slowing down as well. It’s good to know that you’re not alone. Moving, eating, and talking more slowly, and feeling fatigued are common…

Specially Engineered Neural Cells Delay Disease and Extend Life in ALS Animal Model

Transplanting engineered neural cells into the brain of an amyotrophic lateral sclerosis (ALS) animal model delayed disease progression and extended the animals’ survival, a study shows. The study, “Transplantation of Neural Progenitor Cells Expressing Glial Cell Line‐Derived Neurotrophic Factor into the Motor Cortex as a Strategy to Treat Amyotrophic Lateral…

MDA Grants Include Research Projects for ALS and Other Diseases

The Muscular Dsytrophy Association (MDA) awarded 13 new grants totaling $2.6 million to find treatments for neuromuscular disorders, including amyotrophic lateral sclerosis (ALS). The 13 grants are divided into three types: Five grants were awarded to recognized, independent researchers; Five development grants were awarded to early-career scholars, and;…