Time Matters

Among the many challenges I experienced during my early months with ALS was its effect on my perception of time. Before ALS, I pretty much meandered through life in full confidence that many more years lie ahead of me. But with the onset of ALS, all that changed.

A traffic jam inside nerve cells is a feature of most forms of amyotrophic lateral sclerosis and frontotemporal dementia, a study shows. It suggests that easing the jam is a potential strategy for treating ALS. Therapies to do this are moving into clinical trials, the researchers said. The study, “…

A protein called neuronal apoptosis inhibitor protein (NAIP) is a potential disease marker and predictor of outcomes in amyotrophic lateral sclerosis (ALS), according to a new study. The protein’s levels in ALS patients and controls were measured in blood samples in the study. The…

A dissolving tablet version of riluzole called BHV-0223 has shown positive bioequivalence when compared to the oral form of the therapy, Rilutek, developer Biohaven Pharmaceuticals announced. The dissolving tablet, placed under the tongue, is easier to administrate to patients with amyotrophic lateral sclerosis (ALS) who have trouble swallowing. BHV-0223 also was found…

This video from Tyler Morning Telegraph is all about Christi Wyatt Zimmerman. MORE: Soccer coach mom talks about her life with ALS Zimmerman, who’s from Texas, was diagnosed with amyotrophic lateral sclerosis (ALS) in 2014 at just 36 years old. However, despite the devastating news, she’s remained…

This week, Stephen Hawking turned 76. While 76 doesn’t seem all that impressive with many living past 100 in this day and age — for Hawking, it’s simply remarkable. Stephen Hawking was diagnosed with amyotrophic lateral sclerosis (ALS) when he wast just 21 years old. At the time of his…

NeuroSGC, a new scientific partnership formed by the Structural Genomics Consortium (SGC) and the Montreal Neurological Institute and Hospital (The Neuro) aims to discover new treatments for amyotrophic lateral sclerosis (ALS) and Parkinson’s disease — both of which currently lack effective therapies. Drug discovery for these and other neurological…

The U.S. Food and Drug Administration (FDA) has issued a warning to the American CryoStem Corporation of Monmouth Junction, New Jersey, for marketing Atcell, the company’s adipose-derived stem cell product, without FDA approval. In its warning letter, the FDA noted “significant deviations from current good manufacturing practice requirements, including some…

While few of us choose to become caregivers, many of us are faced with the task if a loved one is diagnosed with a chronic disease. The transition is a strange time for everyone involved, as the nature of the relationship changes for both the caregiver and patient. However, it is…

I’m one of those folks who follow daily life routines. Simply put, it’s a series of predictable habits that bring structure to my life and help me maintain a positive attitude while living with ALS. But try as I might, my daily routines did not survive the past…