ALS Stories: How Gus Is Getting the Most Out of Life

https://www.youtube.com/watch?v=7FfWa7fcUw4 This video from Patients Like Me is all about baseball-loving Gus, who has amyotrophic lateral sclerosis (ALS). Gus explains that he is much more than his condition and hopes that others realize they are more than their illnesses, too. MORE: Explaining the early symptoms of…

AB Science announced that abstracts reporting the use of Kinavet (masitinib) in the treatment of amyotrophic lateral sclerosis (ALS) were selected for oral presentation at six international meetings in 2017. The abstracts include both preclinical and clinical data. The meetings include: XXIII World Congress of Neurology (WCN 2017) in Kyoto, Japan,…

“If I was a broken clock, would you throw screwdrivers and bolts into my tool shed?” – “Tool Shed” by Chaya Nemiccolo What is emotional intelligence? Patients can easily learn about the traditional aspects of their doctor’s qualifications with a quick internet search. However,…

Measuring changes in how humans find their way could enable earlier diagnosis of dementia in neurodegenerative diseases, such as amyotrophic lateral sclerosis (ALS) or Alzheimer’s disease, a new review study suggests. The research, “The Aging Navigational System,” appeared…

Amyotrophic lateral sclerosis (ALS) patients without any type of eye disease have thinner retinal layers, a new study shows. The research, titled “Retinal thinning in amyotrophic lateral sclerosis patients without ophthalmic disease” was published in the journal PLOS…

Being diagnosed with amyotrophic lateral sclerosis (ALS) is a difficult and stressful time. You’ll probably feel incredibly overwhelmed in the first few days and weeks, and struggle to understand the ramifications involved. To help with the process, we’ve compiled a list of tips for patients who have recently been diagnosed with…

Being diagnosed with amyotrophic lateral sclerosis (ALS) can be devastating for patients and their families and friends, but there are ways to move forward. We’ve put together a list of coping strategies to help you get through the first few weeks with help from the Mayo Clinic and alswindsor.ca. Allow time and space to…

Routinely measuring neurofilaments in the blood and spinal fluid of people with amyotrophic lateral sclerosis (ALS) can help identify patients with early symptoms, concludes a recent study. Researchers led by Dr. Emily Feneberg of England’s University of Oxford presented the study, “Multicenter evaluation of neurofilaments in early symptom onset amyotrophic…

The company Verge Genomics, which uses genomic data for neuroscience therapeutics, announced that it will join specialized departments at four top universities to boost research in amyotrophic lateral sclerosis (ALS). The innovative industry-academic collaboration will combine machine learning with genomic, genetic, biological, and phenotypical data to accelerate the translation…

Research into the development of new therapies to treat several traumatic, inflammatory, and neurodegenerative diseases including amyotrophic lateral sclerosis (ALS) received an important financial boost with the announcement by Disarm Therapeutics that it will receive $30 million in financing to develop treatments for axonal degeneration. Disarm was founded in 2016 as a…