The Cost of Neuromuscular Disorders in the U.S.

The Muscular Dystrophy Association, in collaboration with the Lewin Group, has calculated the average cost of caring for three of the most common neuromuscular disorders. MORE: Most with chronic conditions find the Affordable Care Act beneficial The study looks at both medical and non-medical costs associated…

Having a service dog can greatly enhance the life of someone living with a chronic disease. They allow patients to regain some of their independence by helping with small everyday tasks like opening and closing doors, fetching meds, acting as a prop or support as their owner stands, switching on lights and attracting attention…

American Airlines has raised more than $800,000 at its second annual American Airlines Charity Golf Tournament to support the research initiative Answer ALS. The tournament and a fund-raising auction took place in American’s home base of Dallas, May 24 and 25. “We are proud to partner with Answer ALS…

Insilico Medicine has launched ALS.AI, a drug discovery platform for new amyotrophic lateral sclerosis (ALS) treatments. It uses a powerful new analytical approach involving “deep learning” to seek out new therapies for the disease — and to evaluate whether existing drugs used to treat other diseases can be repurposed for treating ALS.

ProMIS Neurosciences hopes to develop an ALS therapy around a component of a protein that is faulty in the disease. The TDP43 protein’s abnormality leads to it becoming misfolded — that is, it not having a normal structure — in both amyotrophic lateral sclerosis and frontotemporal dementia (FTD). ProMIS thinks it can eliminate…

Living with ALS means learning to live with a whole new normal. For example, before ALS, my old normal included diligently following recommended guidelines for annual health screening, such as monitoring bone density. This test (thanks to modern technology) is a simple x-ray of the lower spine and hips in…

Researchers have identified the sequence of molecular events leading to motor neuron death in amyotrophic lateral sclerosis (ALS), an important step forward that may lead to new therapies to halt this process. They found that unlike healthy astrocytes, which are…

In this video from the ALS Association, discover some of the signs and symptoms of amyotrophic lateral sclerosis (ALS). The film explains that the symptoms often appear very slowly at first and can vary greatly from person to person. MORE: Do firefighters have an increased risk…

Radicava, also known by its generic name edaravone, is the first treatment approved by U.S. Food and Drug Administration (FDA) in more than two decades to help amyotrophic lateral sclerosis (ALS) patients. While awaiting its arrival, ALS News Today spoke to the company responsible for its U.S. launch,…

The National Institute of Neurological Disorders and Stroke (NINDS) is one of the world’s leading funders of research into amyotrophic lateral sclerosis (ALS). Its goals are to better understand the cellular mechanisms which lead to the development and subsequent progression of ALS, discover more about the…