Radicava, also known by its generic name edaravone, is the first treatment approved by U.S. Food and Drug Administration (FDA) in more than two decades to help amyotrophic lateral sclerosis (ALS) patients. While awaiting its arrival, ALS News Today spoke to the company responsible for its U.S. launch,…
Radicava’s Journey to Becoming 1st ALS Treatment in 22 Years, an Interview with MT Pharma America
What Research Is Being Done on ALS?
The National Institute of Neurological Disorders and Stroke (NINDS) is one of the world’s leading funders of research into amyotrophic lateral sclerosis (ALS). Its goals are to better understand the cellular mechanisms which lead to the development and subsequent progression of ALS, discover more about the…
Share Your Blessings is a non-profit organization that specializes in helping children and adults with special needs. As part of its Project Maestro initiative, it has given away more than 750 Beamz Interactive Music Systems with a retail value of $300,000 to people with disabilities, according to…
Mindfulness-based programs may help improve anxiety and depression in patients with amyotrophic lateral sclerosis (ALS), according to results of a study published recently in the European Journal of Neurology. The study is titled “Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial.” The journal also published…
An artificial-intelligence-proposed ALS therapy prevented the death of movement-control neurons in a lab and delayed the onset of the disease in an animal model, according to British scientists. The University of Sheffield team said the AI company BenevolentAI suggested the therapy, which has yet to have a name. The drug candidate promotes…
15 Signs That Confirm You’re Definitely a Spoonie
A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons. How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be…
An imbalance between production and degradation of protein in the central nervous system may contribute to amyotrophic lateral sclerosis (ALS), researchers at England’s University of Sheffield suggest. Their study, “Protein Homeostasis in Amyotrophic Lateral Sclerosis: Therapeutic Opportunities?,” appeared in the journal Frontiers in Molecular Neuroscience. It reviewed available data showing that disturbances in…
HVH Precision Analytics presented findings of its big data analysis for earlier diagnosis of ALS (amyotrophic lateral sclerosis) to help clinicians treat patients sooner and allow patients to possibly enroll in clinical trials. HVH’s poster presentation, titled “Big Data Analytics for Early Diagnosis of Amyotrophic Lateral Sclerosis (ALS),” took place at…
An Overview of Motor Neuron Disease
In this video, Dr. Simon Freilich gives an overview of the main type of motor neuron disease: amyotrophic lateral sclerosis (ALS). MORE: 16 fast facts about amyotrophic lateral sclerosis Dr. Freilich explains that ALS accounts for around 85 percent of motor neuron disease cases. The…
9 Ways to Manage Brain Fog
One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its effects and…
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