Man with ALS Gets Bucket List Super Bowl Trip

Man with ALS Gets Bucket List Super Bowl Trip

According to The Charlotte Observer, Kevin Clay, age 54, is a Panthers super fan. A season ticket holder for 20 years, Clay and his wife Melinda love the team so much they named their son Cam, after Cam Newton. Clay has ALS and has lost his ability to speak.

Last Week’s Hot Topic on ALS

Last week’s hot topic on ALS was ALS, Gulf War Illness Caused by Toxic Exposures, Report Says written by Magdalena Kegel.  The article refers to a report which shows that Gulf War Illness is a result of exposure to pesticides and other toxins used in the Gulf War.

An ALS Love Story – Often Awesome

“Hello my name is Tim and I have ALS, America’s best kept secret disease.” This video by AllAcesMedia focuses on the daily routine Tim lives with and the care he receives from his wife, friends and nurses. If you ever wanted to know what living with ALS is…this is the one…

Voice for an ALS Patient

Meet Don and his family and learn all about how an ALS patient who had never used a computer before, is able to get his voice back. Keep up to date on ALS news here: https://bit.ly/1QHMBGw…

What is ALS?

Dr. Berglund explains what exactly ALS is, how it’s caused, and what patients can do to naturally treat it… and then, of course, takes the Ice Bucket Challenge. “Dr. Berglund has spent over twenty years at his clinic in southeast Wisconsin helping people improve their health without drugs or…

ProMIS Forms Key Advisory Boards to Advance Its ALS, Alzheimer’s Therapies

ProMIS Neurosciences announced that it has established Business (BAB) and Scientific (SAB) advisory boards to advance the company’s work. ProMIS is developing its first products focused on more effective treatments of amyotrophic lateral sclerosis (ALS) and Alzheimer’s disease (AD). “Our number one goal is to create the appropriate precision therapeutics and companion diagnostics…

ALS Patients to be Able to Communicate with Their Families in Their Own Voice

The Augmentative Communication Program (ACP) at Boston Children’s Hospital has received a $1.5 million donation to set up a program focused on improving the quality of life of amyotrophic lateral sclerosis (ALS) adult patients. “If you could not speak and you want to say to someone, ‘I’m thirsty,’ a computer-generated synthetic voice is fine.

Documenting Life with Motor Neuron Disease

11 years ago, Pete Anderson was diagnosed with motor neuron disease – an incurable condition that’s robbed him of his voice and left him confined to a wheelchair. His life probably wouldn’t normally grab much attention if it weren’t for Pete Anderson’s determined effort simply to be able to…