The solvable tragedy of Lou Gehrig’s disease: all 35,000 current ALS sufferers in the U.S. and 600,000 worldwide will soon die of their disease while existing therapeutics that might possibly help them remain out of reach unless we solve the barriers to access. Learn how one organization is restoring patients’…
https://www.youtube.com/watch?v=FOlG2u68S7s In this Washington Post video, watch Kevin Turner, 45, who “played eight seasons at fullback with the New England Patriots and the Philadelphia Eagles. After being diagnosed with ALS in 2010, Turner has brought awareness to concussion-related issues in football as he continues to fight an incurable disease.”…
In this 2014 video, Mashable takes you back to the first edition of the Ice Bucket Challenge and how it took social media by storm. Mashable Explains takes a look at what ALS is and how it affects the body. Learn more about ALS:Â https://bit.ly/ALSNewsToday…
University of Kyoto researchers discovered that a protein associated with a gene involved in cancer suppression, the VHL protein, and a protein that rescues cells from hypoxia (low oxygen) conditions, cullin2, are both involved in ALS progression. This discovery can lead to the identification of therapeutic targets for ALS treatment. The…
Amylyx Pharmaceuticals, a company developing a innovative therapeutic for amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease), recently announced that former Biogen CEO Walter Gilbert, Ph.D and Nobel Laureate, will join Amylyx’s board of directors. “Dr. Gilbert brings an enormous breadth of experience as a scientist, biotech founder,…
CIRM has funded the ALS Disease Team led by scientists at UC San Diego, The Salk Institute, and Life Technologies Corporation, who aim to bring a human embryonic stem cell-based ALS therapy to clinical trials within four years. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is…
Motor neurone disease (MND) is a terminal disease and is physically and emotionally devastating for both the sufferer and the carer. In this Tobin Brothers exclusive documentary, Lisa Morgan, wife of actor Richard Morgan, and former AFL coach Neale Daniher talked to Michael Lynch about their confronting experiences with…
Researchers have identified an essential protein, Pur-alpha, for motor neuron cells’ mechanisms of defense against external stress and degeneration and also as a potential new therapeutic target for the treatment of amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease). The research paper, “Pur-alpha regulates cytoplasmic stress granule dynamics and ameliorates…
Meet Bernardo Pinto Coelho. In this video, he talks about the five rules which have helped him improved his life with ALS. Learn more about ALS here: https://bit.ly/ALSNewsToday…
“This video explores a highly compelling cause of ALS, how it may have given Lou Gehrig himself ALS, and how the ALS association is reacting to it.” Learn more about ALS: https://bit.ly/ALSNewsToday…
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