My husband, Todd, and I celebrated our 23rd wedding anniversary this week. We’ve spent 16 of those years with ALS since Todd’s diagnosis in 2010. I’ve been thinking recently about how we have found meaning within this difficult life we’ve been living for so long. Todd and Kristin…
ALS Nexus 2026: Experimental therapy shows early promise in SOD1-ALS
For Emmy award-winning host and New York Times bestselling author Tabitha Brown, joy, gratitude, and hope have guided her through life since losing her mother to amyotrophic lateral sclerosis (ALS) in 2007. Speaking this week at the ALS Nexus conference in Orlando, Florida, and online, Brown shared how…
An experimental implantable device from Precision Neuroscience enabled computers to decode brain signals to predict movement and speech, which could eventually help create assistive devices for people with amyotrophic lateral sclerosis (ALS). That’s according to findings from preliminary tests conducted in patients undergoing routine neurosurgical procedures, which were…
People with diabetes may be less likely to develop amyotrophic lateral sclerosis (ALS) than those without diabetes, according to findings detailed in a poster presented at the ALS Nexus conference. The study also found that people with a longer reported duration of diabetes and those receiving insulin as…
The ALS Association has awarded Mitochon Pharmaceuticals a $1 million grant to support a Phase 2 clinical trial testing the company’s experimental therapy MP-101 in people with amyotrophic lateral sclerosis (ALS). The study is still in the planning stages and is expected to kick off next year.
Higher levels of physical activity were associated with a lower risk of developing amyotrophic lateral sclerosis (ALS) in a large U.K. study. The association was seen using both self-reported activity questionnaires and objective measurements from wrist-worn devices called accelerometers. Among participants with known genetic risk factors for ALS,…
Nine years ago, and seven years into my husband Todd’s ALS journey, we were still trying our best to get out and have a normal life. That fall, our 8-year-old son came home from school with a flyer from a local church. They were hosting a Harvest Festival and…
A modified frailty index based on five self-reported health measures may help identify people at higher risk of developing amyotrophic lateral sclerosis (ALS), according to a new study. The model, which included falls, whole-body pain, long-standing illness or disability, self-rated health, and tiredness or lethargy in the previous two…
While scrolling through social media the other day, I came across a question that stopped me in my tracks: How has having ALS impacted your life for the better? I scanned the replies and thought to myself, “It all depends on which chapter of my ALS journey you’re asking…
Recent Posts
- ALS Nexus 2026: Experimental therapy shows early promise in SOD1-ALS
- Finding meaning together in life after 16 years with ALS
- ALS Nexus 2026: Speaker shares hope navigating mom’s ALS
- ALS Nexus 2026: Implantable device decodes patients’ brain signals
- ALS Nexus 2026: People with diabetes may have lower ALS risk, study says