A Life Story Foundation – Kevin Swan’s Story

Kevin Swan was diagnosed with ALS in February of 2012. Within a couple of months of diagnosis, he left his job as Director of Communications for SingleHop, a rapidly growing infrastructure service provider, and founded A Life Story Foundation. A 501(c)(3) organization, ALSF’s mission is to tell the stories…

Eisai announced it has withdrawn its new drug application for an ultra-high dose Mecobalamin as a treatment for amyotrophic lateral sclerosis (ALS) in Japan, and is reviewing its next steps in consultation with Japanese regulatory officials. Mecobalamin is one of the co-enzyme forms of vitamin B12. As it is physiologically equivalent…

In this Edinburgh Medical School video, learn more about the Voicebanking Research Project at the University of Edinburgh. This project aims to create personalised synthetic voices for use in communication aids. Learn more about ALS here: https://bit.ly/ALSNewsToday…

In this video by MrDittos, watch Ricky Wyatt share his testimony about his journey over the previous twelve months with ALS. Learn more about ALS here: https://bit.ly/ALSNewsToday…

Learn all about amyotrophic lateral sclerosis (ALS) in this video from Karalyn Pappas. Learn more about ALS here: https://bit.ly/ALSNewsToday…

Last week’s hot topic on ALS was an article titled Proteins ‘Tagged’ to Clump in ALS Protect Neurons from Toxicity, Research Finds written by Magdalena Kegel. The article is focused on researchers at The Scripps Research Institute, who discovered that cells instruct proteins to…

Scientists from Rutgers and Stanford universities have developed a potentially revolutionary technique to grow new neurons from adult stem cells and better ensure their survival during transplantation to the brain. The method, involving the use of 3-D scaffolds, may one day help to treat amyotrophic lateral sclerosis (ALS). Published in the…

“A former captain of the Boston College baseball team and professional baseball player in Europe, Pete Frates was diagnosed with ALS in March of 2012, at the age of 27. Since his diagnosis, Pete has enjoyed the strength and support of his family and new bride, Julie. Pete and…

https://www.youtube.com/watch?v=8H0fTikpvmQ In this Caley Leonard video, learn all about Caley and Greg’s ALS Story. Learn more about ALS here: https://bit.ly/ALSNewsToday

In this AmazingNewsVid, find out what inspired this family to live a ‘magical year’. Award-winning journalist Susan Spencer-Wendel was in her prime when she received a devastating diagnosis: ALS, sometimes known as Lou Gehrig’s disease. Knowing she only had a few years to live, she and her family started tackling…