Did you know that walkers weren’t invented until the 1950s? I shudder to think how mobility-challenged people managed to get around, or didn’t, before that time. And it wasn’t until 1978, when a woman in Sweden (who had polio) added four wheels onto her walker, creating what…
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6 of the Best Apps for Chronic Illness Management
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage your chronic…
Last week, I had the opportunity to listen to an exciting and encouraging webinar on “Exercise and ALS: A Discussion of Research and Practical Recommendations.” Of course, I realize that exciting and encouraging don’t always show up in the same sentence with exercise and…
A musical instrument that can be played only with brain activity may empower and rehabilitate patients with ALS and other motor diseases. Invoking brain scans known as electroencephalograms, University of Washington researchers have dubbed the musical device they created an Encephalophone. The article they wrote about it, titled “A Novel Musical…
The Orlando-area medical marijuana company Green Relief is reminding Florida residents that the state no longer requires a 90-day waiting period before a patient with a serious disease like ALS can receive treatment. Florida lifted the 90-day requirement June 24 with rules that implemented changes in the state’s medical marijuana law…
In this video from ITV’s This Morning, television presenter Charlotte Hawkins talks about her father’s journey with motor neuron disease (MND), which is also known as amyotrophic lateral sclerosis (ALS). She highlights how lonely people can feel living with the disease, particularly when they lose the…
Like so many who live with ALS, I have weak muscles in my lower legs that limit my mobility. To help me roam through the house, I rely on a walker with wheels. I also use it for covering short distances when my husband and I are out running errands.
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing words. For children and adults with neuromuscular disorders like spinal muscular atrophy (SMA), muscular dystrophy (MD) and amyotrophic lateral…
Amyotrophic lateral sclerosis (ALS) is a progressive muscle-wasting condition. Although it can affect each patient in different ways, as the condition worsens many may find it increasingly difficult to eat and drink. Common issues can include difficulties chewing and swallowing as the muscles of the throat and mouth weaken. The…
H.P. Acthar Gel (repository corticotropin injection) is an investigational treatment for amyotrophic lateral sclerosis (ALS) being developed by Mallinckrodt Pharmaceuticals. It is administered as an injection. The drug is currently approved to treat various other conditions, including multiple sclerosis (MS). How H.P. Acthar Gel works ALS is a…