After my husband, Todd, was diagnosed with ALS, we moved from Wisconsin to my childhood hometown in the Upper Peninsula of Michigan, where we built an accessible home on a small corner of my parents’ 38-acre plot. As his ALS has progressed, I’ve had to stick closer and…
Recently, while at my ALS clinic, I had an enlightening discussion with my neurologist about the evolving understanding of the disease mechanisms of ALS. My doctor told me that for many years, the medical community viewed ALS as a singular condition with similar needs and symptom…
The best way to manage amyotrophic lateral sclerosis (ALS) is through a multidisciplinary care plan tailored to a person’s specific medical needs. This includes ALS medications, supportive therapies, and symptom management.
Whether you have been diagnosed with ALS or are a caregiver, it’s important to know the facts. Here are some common myths about the disease and the truth about each claim.Â
A multifaceted care and treatment approach started as soon as possible after an ALS diagnosis can help maintain independence for longer and improve quality of life for both those with ALS and their caregivers.
Understanding how your ALS treatment plan evolves over time with the progression of the disease will enable you and your caregivers to make informed decisions about your care.
Financial planning can help with managing expenses related to living with ALS, so you can focus on your health and well-being. Working with a financial adviser or navigator can help you find health insurance, along with financial assistance programs.
It’s been more than four years since I was a caregiver for my late husband, Jeff, who died of ALS in May 2020. Caring for Jeff is the hardest and scariest thing I’ve ever done, a fact that took me years to acknowledge out loud because I believed that…
People with amyotrophic lateral sclerosis (ALS) who are treated by a neurologist are more likely to receive evidence-based care endorsed by the American Academy of Neurology than those who see non-neurologist providers, according to an analysis of Medicare data. Still, fewer than half of the ALS patients studied…
After my husband, Todd, was diagnosed with ALS at age 39, he grieved the loss of his career and struggled to find a sense of purpose. When he was healthy, he’d hoped to take on new roles with his company and advance in management, but all of that became…
