A self-described "skinny boy” from Blacksburg, Virginia, Ned is a charmer whose positivity didn't fade after his ALS diagnosis. See how Ned overcame his fear of "What's next?" to become an inspiration in the ALS community.
Neuvivo’s NP001 (sodium chlorite) may help slow the progression of amyotrophic lateral sclerosis (ALS) by taming the systemic inflammation caused by gut bacteria leaking into the bloodstream, according to a new analysis of Phase 2 trial data. The findings point to microbial translocation, which occurs when bacteria break through…
The ALS Association and Paralyzed Veterans of America (PVA) are pressing the Congress to pass legislation boosting the financial support given the spouses and dependents of U.S. veterans whose death comes after nearly a decade of living with amyotrophic lateral sclerosis (ALS) due to their service. Specifically, the…
An international team of researchers discovered how, during development, motor neurons — the nerve cells controlling movement whose death causes amyotrophic lateral sclerosis (ALS) — direct blood vessel growth around them while growing toward target muscles. Specifically, motor neurons were found to secrete a combination of signaling molecules that…
When Juan heard, "you have ALS," his world went spinning. He learned how the right support could help him face his new challenges. Hear how his family and the ALS community rallied around Juan when he needed it most.
Early treatment with CNM-Au8 continues to demonstrate survival benefits in people with amyotrophic lateral sclerosis (ALS) compared with those who started treatment nine months later, according to an update from its developer, Clene Nanomedicine. The updated results come from the RESCUE-ALS Phase 2 trial (NCT04098406) and its open-label…
“Oh shoot, I just dropped my coffee. There goes my favorite mug! It was a gift for Father’s Day…” Juan shares his early days with ALS, his 2-year journey to diagnosis, and how he found the strength to move forward.
Learn how Juan and his family embrace life and make the most of every opportunity after his diagnosis. Hear why he thinks it's important to take a breath if you're overwhelmed and know you're not alone in the ALS community.
The U.S. Department of Defense (DOD) has awarded a $1.475 million grant to Aclipse Therapeutics to advance M102 — an experimental oral therapy for amyotrophic lateral sclerosis (ALS) — into first-in-human clinical trials. The therapeutic development award comes from the Congressionally Directed Medical Research Programs (CDMRP) at the…
I’m always eager to help others improve their understanding of what it’s like to live with amyotrophic lateral sclerosis (ALS). Likewise, I enjoy learning more about what others in the ALS community think and feel about living with the condition. Recently, I had the opportunity to satisfy both interests and…
