Have you taken part in the latest trend to go viral on the internet? Following the success of the Plank and ALS’s own Ice Bucket Challenge, the latest craze is to gather your friends for the Mannequin Challenge. The Mannequin Challenge requires of a group of people to stand completely still in…
Measures of respiratory muscle strength among patients with amyotrophic lateral sclerosis (ALS) can predict survival, both with and without the need for mechanical ventilation. Studies in which solid objective measures of disease prognosis are still scarce. But, serving as markers of prognosis, these measurements may aid in the development of…
The U.S. Food and Drug Administration will allow MonoSol Rx to use a new form of its Riluzole therapy, Riluzole Oral Soluble Film (Riluzole OSF), to treat amyotrophic lateral sclerosis (ALS) before the agency approves the new therapy. The FDA granted MonoSol Rx’s request that Riluzole OSF receive Investigational New Drug status, which…
AB Science SA‘s anti-inflammation treatment masitinib protects muscles and nerves against damage from amyotrophic lateral sclerosis (ALS), researchers have concluded. Professor Luis Barbeito of the Institut Pasteur in Montevideo, Uruguay, presented the findings at the 27th International Symposium on ALS/MND (Motor Neuron Disease) in Dublin, Ireland, in December of 2016. Masitinib…
https://vimeo.com/124557753 In this heartfelt video from the ALS Association Texas chapter shared in 2015, we meet Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known…
A protein called Nrf2 could clear away harmful miss-folded proteins causing Parkinson’s and other neurodegenerative diseases by activating “house keeping” mechanisms in the cells according to a study published in the Proceedings of the National Academy of Sciences.
By inserting gene coding for light-sensitive proteins into other cells, researchers have developed a tool for studying the way liquid-like protein structures assemble inside cells. The tool will not only increase understanding of how cells work while healthy, but also contribute to research on diseases such as amyotrophic lateral sclerosis…
ALS can be a difficult disease to diagnose as many of the early signs and symptoms can mimic those of other conditions. In this video shared by Mike Brez, we meet Clara. Clara has recently been diagnosed with amyotrophic lateral sclerosis (ALS) after first being misdiagnosed with carpal tunnel…
The pharmaceutical companies Evotec and Celgene will collaborate on a drug discovery and development program to identify and develop novel disease-modifying therapies for several neurodegenerative diseases, including amyotrophic lateral sclerosis (ALS). The partnership will allow the screening of drug compounds developed by Celgene using Evotec’s platform of induced pluripotent…
This emotional video from Marissa Coriell is an incredibly moving tribute to her husband, Alexander. Alexander was diagnosed with amyotrophic lateral sclerosis (ALS) in January 2013. The video shows how quickly his condition progressed. By September 2013, Alex was unable to swallow food and needed a feeding tube,…
