Being diagnosed with amyotrophic lateral sclerosis (ALS) can be devastating for patients and their families and friends, but there are ways to move forward. We’ve put together a list of coping strategies to help you get through the first few weeks with help from the Mayo Clinic and ALSWindsor.ca.
Allow Time and Space to Grieve
Everyone will require time to absorb the information given to them about the disease and to come to terms with the reality of ALS. Some people may take longer than others, so allow people time to process the diagnosis. It’s OK to feel angry, sad, depressed and to grieve and mourn.
Soccer coach mom talks about her life with ALS.
Als patients are the strongest and bravest people on earth. All these organizations claiming to help people living with als by given equipments.
Please have a heart and fight to get Nurown and Edaravone available for als patients.
It doesn’t look like anyone cares about a cure this might stop all their fundings.
5600 people lives doesn’t seems to matter.
My dad had ALS for nine years. It was a tough ride for him and for our family as whole. I have more tips for dealing with the tragedy of an ALS diagnosis in your family on my blog. Maybe it can give others some insight on what to expect. Check it out here: https://www.thernrx.com/howto-cope-with-your-parents-als-diagnosis/
To anyone newly diagnosed with ALS coming to this website. Stay strong, there is a large community willing to help.
Kevin