5 Misconceptions About ALS You Might Find Interesting


Amyotrophic lateral sclerosis (ALS) is sometimes known as Lou Gehrig disease after the baseball player who famously suffered from it. Although ALS is a more common disease than we would like it to be, there is still little known about it and many are unaware of the details of the condition.

MORE: Find out more about seven symptoms of ALS

That lack of knowledge can lead to misconceptions about ALS. To help educate the public, we’ve put together this list featuring five common misconceptions about amyotrophic lateral sclerosis.

ALS is a muscle disease. 
Because most symptoms of ALS are related to muscle activity, many people don’t realize the underlying cause: damage to the nerve cells.

ALS affects only the body. 
This is not true. As ALS progresses, some patients develop cognitive impairments.

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Lyme disease is one of the main causes of ALS
There are many similar symptoms between the conditions, which has led to this misconception but there is no evidence that ALS can be caused by Lyme disease or other infections.

ALS only affects old people. 
While cases of ALS are most common in 40- to 70-year-olds, this statement is not true — young people can also be diagnosed with this condition.

ALS genetics is only relevant for hereditary cases. 
Although having ALS in the family may increase your risk of developing the condition, it can be caused by genetic mutations even if there is no family history of the disease.

MORE: 10 tips for patients newly diagnosed with ALS

ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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  1. ArtistLike says:

    “There are many similar symptoms between the conditions, which has led to this misconception but there is no evidence that ALS can be caused by Lyme disease or other infections.”

    Unfortunately, the significant overlap in symptoms has also led to many people who have (treatable) Lyme disease being misdiagnosed with ALS. There are documented cases of people having been told they have ALS, and then receiving a Lyme diagnosis, being treated with antibiotics, and recovering from their supposed ALS “death sentence.” This is significant, and it’s an important context for the above statement about Lyme disease. Lyme may not be the cause of ALS, but in some cases Lyme is *mistaken* for ALS, and without treatment Lyme disease can have similarly tragic outcomes if the infection is not properly diagnosed and treated. Here’s one man who was properly diagnosed with Lyme after a wrong ALS diagnosis and who recovered his health: https://www.lymedisease.org/372/

  2. Alisa Cameron says:

    My husband was diagnosed with ALS (amyotrophic lateral sclerosis) when he was 61 years old 4 years ago. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. His arms weakened first, then his hands and legs. Last year, a family friend told us about Rich Herbs Foundation (RHF) and their successful ALS TREATMENT, we visited their website ww w. richherbsfoundation. c om and ordered their ALS/MND Formula, i am happy to report the treatment effectively treated and reversed his Amyotrophic Lateral Sclerosis (ALS), most of the symptoms stopped, he is able to walk and able to ride his treadmill again, he is pretty active now.

    • Char lyman says:

      I am very interested in your story my husband is only 48 and got an als diagnosis but we are at a homeopathic clinic right now and they think lymes ?

    • Donald J Lovell says:

      Alisa. I would love to hear more on this treatment. I have been diagnosed with lyme stage 3. Have had for a while. I have many symptoms. Weak arm and leg and hand and foot. Right side. Nuero muscular clinic gave me a als diagnosis on top of the lyme aswell. Gave me 3-5 yrs im only 38 and dnt believe this is the end of my story.

      • James Scalera says:

        Donald I have had lyme for about 9 years, I was 24 when I got it 33 now. I also believe that I have ALS too though because the past year I have developed much more severe neurological symptoms. I do think there can be a link for sure . Have you been treated for the lyme?

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