ALS Stories: This Woman’s Diagnosis Motivated Her to Fight for Clinical Trials

This video from Patients Like Me is all about Cris, who is a mother, grandmother, and great-grandmother. Cris also has amyotrophic lateral sclerosis (ALS).

She was diagnosed two years ago but hasn’t had the time to sit around and get depressed about her diagnosis. In between spending time with her family, Cris also looks after her husband who found out he had rectal cancer shortly after her own diagnosis.

MORE: ALS stories: How Gus is getting the most out of life

Cris is also a fierce advocate for the disease and has had meetings with the FDA and advocacy representatives in Washington, D.C., to discuss the need for more clinical trials for ALS and the need for more patience in the clinical trials. She is determined to do as much as she can and not be defined by the disease.

MORE: Nine things to know about the new ALS drug, Radicava

ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Leave a Comment

Your email address will not be published. Required fields are marked *